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Featured Article | Advocacy

MDA On the Road Launches at High-Impact Conferences to Advocate for Neuromuscular Community

MDA On the Road launches a journey to advocate for the neuromuscular disease community with appearances at high-impact conferences.

Tags: Access MDA, Advocacy Updates, Community, Summer Camp, Young Adults


Blog Post | Get Involved

How Calls from the MDA Family Support Team Make a Difference

When you join MDA, you become a member of an active, broader, and supported neuromuscular community. One way that MDA stays connected with our families through every step of their…

Tags: Community, MDA Care Centers, Resources


Blog Post | Independence, Lifestyle

How Protective and Advocacy Organizations Help People with Disabilities

Protective and advocacy organizations offer legal support people for with disabilities to exercise their rights.

Tags: Employment, Featured Content, Resources


Blog Post | Research, Science + Research

Clinical Trial Alert: Phase 2 Study of Vamorolone in Adults with BMD

Researchers at the University of Pittsburgh are seeking adults living with Becker muscular dystrophy (BMD) to participate in a phase 2 clinical trial to evaluate the safety and efficacy of vamorolone…

Tags: Clinical Trial Alert


Blog Post | Research, Science + Research

Research Study Alert: Natural History Study in Adults Receiving Treatment for SMA

Researchers at Ohio State University are seeking adults living with spinal muscular atrophy (SMA) to participate in a 12-month natural history study. The objective of this observational study is to look at…

Tags: Research Study Alert


Blog Post | Research, Science + Research

Research Study Alert: Cognition Study in Boys with DMD and their Biological Mothers

Researchers at Virginia Commonwealth University are seeking boys living with Duchenne muscular dystrophy (DMD), as well their biological mothers who may or may not carry DMD-causing genetic variants, to participate in a…

Tags: Research Study Alert


Blog Post | Independence, Personal Stories

Quest for Success: Dr. Chris Rosa

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks…

Tags: College, Education, Employment, Personal Care Attendants, Quest for Success, Staying Active


Blog Post | Get Involved, Lifestyle

A Magic Collaboration at the MDA Tribute Tour in Boston

Magic Wheelchair has been making custom, adaptable wheelchair costumes for seven years, having provided one-of-a-kind costumes to over 300 individuals living with a disability.  Just in time for Halloween, the…

Tags: Community, Fill the Boot, MDA Tribute Tour


Blog Post | Advocacy, Independence, Lifestyle, News

Will New Federal Funding Make Public Transit More Accessible?

New federal funding is available to help make public transportation more accessible. Here’s how it can make a difference.

Tags: Accessible Air Travel, Featured Content, Travel


Blog Post | Health, Lifestyle

Stress Management Tips for Family Caregivers

These 10 tips help family caregivers manage stress and avoid burnout.

Tags: Caregiving, Mental Health, Relationships