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Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: How My MG Journey Has Shaped Who I Am Today

Courtney B. is a passionate advocate for living life to the fullest despite the challenges that come with chronic illness. A high school senior from Indiana, she is an early…

Tags: Ambassador Guest Blog, Ambassadors, College, Community, Mental Health, Relationships, Staying Active, Summer Camp, Year of Independence, Young Adults


Featured Article | Advocacy, Inclusion, Independence

Accessible Air Travel Is Ready for Takeoff. Can It Avoid Turbulence?

Updates on recent policy and rule changes to make air travel safer and more accessible for people with disabilities.

Tags: Accessible Air Travel, Featured Content, Travel, Web Exclusive


Blog Post | Lifestyle, Personal Stories, Tools& Resources

My Father’s Journey with ALS

Father’s Day can be a beautiful celebration — but also a tender time for many. For those whose fathers are no longer with us, this day may carry sorrow along…

Tags: Caregiving, Community, MDA Care Centers, Mental Health, Relationships


Blog Post | Finding a Diagnosis, Health, Science + Research, Tools& Resources

Simply Stated: Updates in Ryanodine Receptor 1-Related Disorders (RYR-1-RD)

RYR-1-Related Disorders (RYR-1-RD) are a group of rare, inherited muscle disorders caused by variants in the RYR1 gene. This gene encodes the ryanodine receptor type-1 (RyR1) protein, which is important for…

Tags: Clinical Trials, Gene Therapy, MDA Resource Center, Simply Stated


Blog Post | Health, Independence

Speech Devices Improve Communication When ALS Affects the Voice

Communication devices are crucial technology for people with ALS, or Lou Gehrig’s disease, when their speech declines.

Tags: Equipment and Assistive Devices, Featured Content, Technology


Featured Article | Inclusion, Lifestyle

Accessible Travel on a Budget: Smart Tips for Exploring Affordably

Travel with a disability doesn’t have to be expensive. Follow this guide to discover accessible, budget-friendly adventures worldwide.

Tags: Accessible Air Travel, Featured Content, Thrive 365, Travel


Featured Article | Finding a Diagnosis, Science + Research

Understanding Congenital Myasthenic Syndrome: Causes and Treatments

Are new therapies on the horizon for the weakness and fatigue of CMS? Researcher Hanns Lochmüller, MD, PhD, answers questions.

Tags: Drug Development, Featured Content, Gene Therapy, Genetic Testing, Research, Spotlight


Featured Article | Independence, Lifestyle

Is Train Travel a Wheelchair-Friendly Alternative to Flying or Driving?

Train travel may offer a more accessible option for people with disabilities frustrated by airline mishandling of mobility devices.

Tags: Featured Content, Travel


Featured Article | Inclusion, Lifestyle, Personal Stories

Advocating for Himself Helps Matt Curcio Serve Others

Matt Curcio turned a lifetime of disability self-advocacy into a career helping others find inclusion in employment and travel.

Tags: Employment, Featured Content, Quest for Success, Travel


Featured Article | Health, Inclusion

Navigating Life with MDA Community Education Programs

MDA Community Education offers free expert-led learning, practical resources, and opportunities for connection in the community.

Tags: A Look Inside, Community, Community Education, Featured Content, Resources