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Researchers at Vor Bio are conducting a global phase 3 clinical study (UPSTREAM MG) for adults with generalized myasthenia gravis (gMG) who are AChR or MuSK+. The study will evaluate…

Morimoto–Ryu–Malicdan neuromuscular syndrome (MRMNS) is an inherited condition that was first reported on in late 2024. It is caused by variants in the RFC4 gene and is classified as a…

The MDA Quest Media Product Guide is designed to help you find the products you need to live a more independent, stylish, fun, and all-around great life. All the products…

Accommodations at the dentist’s office, adaptive tools for brushing and flossing, and more tips for hygiene and overall health.

Q&A with Priyanka Kakkar about ADSS1 myopathy, founding Cure ADSSL1, and driving research and care for rare diseases.

Sharon Townsend, living with limb-girdle muscular dystrophy, found renewed confidence and purpose in a second-act career.

Current clinical trials enrolling, recent study results, new drug approvals, and more across MDA diseases.

Moms living with neuromuscular diseases and maternal-fetal medicine specialists share experiences and expert guidance for pregnancy, delivery, and postpartum.

MDA’s DME Grant Program helps people access essential durable medical equipment for greater independence and daily support.

Headlining comedian Fiona Cauley uses humor and honesty to raise awareness about Friedreich ataxia and living with disability.