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Blog Post | Finding a Diagnosis, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: How Genetic Testing Helped Us Feel Empowered

Jessica and Mark Lennox live in Jupiter, Florida with their two sons, four-year-old William, and two-year-old old Paul. Mark is a US Army veteran and works in renewable energy. Jess,…

Tags: Ambassador Guest Blog, Ambassadors, Caregiving, Genetic Testing


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Tools& Resources

Quest Podcast: Defending Medicaid with the MDA Advocacy Team

In this Quest Podcast episode, we chat with Joel Cartner, MDA’s Director of Access Policy, and Jori Houck, MDA’s Manager of Advocacy Engagement. They join us to share the most…

Tags: Advocacy Updates, Community, Healthcare, MDA Advocacy


Blog Post | Independence, Lifestyle

Travelers with Disabilities Share Their Top Tips to Avoid Mishaps

Travel with a disability is unpredictable. Here are tips to plan and prepare for a smoother trip with a wheelchair.

Tags: Accessible Air Travel, Featured Content, Travel


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Spreading Awareness One T-shirt at a Time

Dwayne Wilson is 57 years old. He is originally from Southern California and lived in Spokane, WA. for 20 years until moving back home to Irvine, Ca, in 2017. Dwayne…

Tags: Ambassador Guest Blog, Ambassadors, Community


Blog Post | Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Community, Equipment and Assistive Devices, Finance, Healthcare, In Case You Missed It, Research, Resources, Travel


Blog Post | Get Involved, Independence, Lifestyle

One Family’s Decades of Dedication to MDA Summer Camp

Craig Helget and his brother, Terry Helget, at MDA Summer Camp in 1985. The Helget family has been volunteering at MDA Summer Camp for more than four decades. It all…

Tags: Community, Relationships, Summer Camp, Volunteers


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Quest Podcast: Finding Joy in the Midst of Change

In this Quest Podcast episode, we chat with MDA Ambassador Jess Westman about embracing individuality and finding joy in our lives as paths and priorities change. The activist, actor, composer,…

Tags: College, Community, Education, Mental Health, Relationships, Young Adults


Blog Post | Health, Lifestyle, Science + Research, Tools& Resources

Clinical Research Opportunity: LION-CS101 a Phase 1/2 Study of AB-1003 in Adults with LGMD2I/R9

Researchers at AskBio are seeking adults with genetically confirmed limb-girdle muscular dystrophy (LGMD) type 2I/R9 to participate in a phase 1/2 clinical trial (LION-CS101) to evaluate the safety and tolerability of…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | Finding a Diagnosis, Health, Lifestyle, Science + Research, Tools& Resources

Simply Stated: Updates in Neuromuscular Junction (NMJ) Disorders

The neuromuscular junction (NMJ) disorders are a group of conditions that disrupt the communication between motor neurons and muscles, resulting in muscle weakness, fatigue, problems with movement and mobility, and, in…

Tags: Simply Stated


Blog Post | Health, Independence, Lifestyle

Pro Tips to Add More Movement to Your Day

Adding more movement or physical activity to each day is a common goal among people living with neuromuscular disease. However, muscle fatigue, weakness, and limited strength or range of motion…

Tags: Community, Staying Active