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Blog Post | Health, Inclusion, Independence, Lifestyle, Personal Stories

Insights by Ira: A Celebration of the Best of MDA Center Care Physicians

Prior to the start of 2025, I began the usual and customary exercise of establishing professional and personal goals for the new year.  While I have many goals this year,…

Tags: Ambassadors, Healthcare, MDA Ambassadors, MDA Care Centers, MDA National Ambassador Blog, Resources


Blog Post | Advocacy, News, Science + Research

Making an Impact on Day 1 of the MDA Clinical and Scientific Conference

The first day of the 2025 MDA Clinical & Scientific Conference featured stirring opening remarks, research awards, and a keynote by the former FDA Commissioner.

Tags: Community, Featured Content, MDA 75th, MDA Clinical and Scientific Conference, Research


Blog Post | Finding a Diagnosis, Get Involved, Health, Inclusion, Independence, Lifestyle, News, Personal Stories, Research, Science + Research, Tools& Resources

Celebrating 25 Years of Impact: MDA’s Wings Over Wall Street Gala Honors Leaders in ALS Research and Advocacy

For a quarter of a century, MDA’s Wings Over Wall Street has brought the ALS community together in New York City, raising millions of dollars to advance research and improve…

Tags: Caregiving, Community, Drug Development, Healthcare, Innovation, MDA'S Wings Over Wall Street, Relationships


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Make Sense? Say Yes!

Grace LoPiccolo, 21, of St. Louis, Missouri, was diagnosed with CMT-1A at the age of nine. She currently attends Saint Louis University majoring in Bioethics and Health Studies, and  Catholic…

Tags: Ambassador Guest Blog, Ambassadors, Community, Relationships, Staying Active, Young Adults


Blog Post | Get Involved, Inclusion, Lifestyle

Five Tips to Increase Socialization this Spring

Increasing socialization, cultivating meaningful relationships and friendships, and limiting isolation or loneliness in an increasingly remote world is a desire – and challenge – for many adults. Individuals living with…

Tags: Community, Mental Health, Relationships, Staying Active


Blog Post | Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Ambassadors, Community, Employment, Healthcare, In Case You Missed It, Parenting, Quest Podcast, Relationships, Research, Resources


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Science + Research, Tools& Resources

Quest Podcast: PJ’s Protocol: A Lifesaving Procedure Fueled by Love

In this episode of Quest Podcast, we chat with three pillars of the Duchenne muscular dystrophy community who are here with us on the 10th anniversary of PJ’s protocol. First,…

Tags: Caregiving, Community, Drug Approval, Drug Development, Healthcare, Innovation, Research


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Finding My Way to a Sober and Healthy Way of Living

Cassidy Nilles is 35 years old and lives in Illinois. Cassidy lives with Limb Girdle muscular dystrophy (LGMD) type 2J. She lives with her daughter, Capri, and their maltipoo, Mila,…

Tags: Ambassador Guest Blog, Ambassadors, Community, Mental Health, Relationships, Young Adults


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

Accommodations and Independence: Spreading My Wings on Campus

Sydney Bryant lives in Illinois with her parents. She loves to travel and plans to work as an air traffic controller. A few years ago, Sydney had the honor of…

Tags: Ambassadors, College, Community, Education, MDA College Scholarships, Mental Health, Travel, Year of Independence, Young Adults


Featured Article | Inclusion, Lifestyle, Personal Stories

From the Ski Slopes to the Spirit of Inclusion

Sean Marihugh found his calling as an adaptive ski instructor who reminds people that the outdoors is for everybody.

Tags: Featured Content, From Where I Sit, Staying Active