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Ambassador Guest Blog: How Fostering Dogs Despite Living with a Disability Gives Me Joy and Purpose
Nora Ramirez lives in California, and was diagnosed with Selenon (SEPN1)-related myopathy (RM) at the age of 9 years old. She is one of four siblings with SEPN1-RM; the other…
Behind the Drug: Tofersen (Qalsody) for ALS
Tofersen, marketed by Biogen under the brand name Qalsody, is a targeted therapy for SOD1-associated ALS. Learn about the development of the drug and if it might be right for…
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Creative and Budget-Friendly Gift Ideas to Say Thank You to Your Caregivers
Caregivers, whether formal or informal, are often an intrinsic part of day-to-day life for individuals living with disabilities. As we celebrate National Caregiver Appreciation Month this November and prepare to…
Tags: Caregiving, Community, Relationships
A Q&A Look into the Planning and Upcoming Topics of the 2025 MDA Clinical & Scientific Conference
The 2025 MDA Clinical & Scientific Conference is coming up! Each year, MDA hosts visionary leaders in neuromuscular disease research and treatment, creating an opportunity for the research and medical…
MDA National Ambassador Blog-Insights by Ira: A Journal of Gratitude
Ira J Walker III During the recent pandemic, I created a written nest of emotional solace by constructing a daily gratitude journal. This was a journal that I diligently spent…
Tags: Ambassadors, Community, Insights by Ira, Ira, Mental Health, Relationships
Five Things You Should Know About the SSA’s Changes to Supplemental Security Income
This year, the Social Security Administration (SSA) announced several important changes to how it calculates Supplemental Security Income (SSI) benefits. SSI provides monthly cash payments to many adults and children…
Tags: Advocacy Updates
Simply Stated: Updates in Amyotrophic Lateral Sclerosis (ALS)
Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disorder that causes muscle weakness, disability, and eventually death, often within three to five years from when the symptoms first appear. In ALS,…
Tags: Clinical Trials, Community, Drug Development, Healthcare, Innovation, MDA Care Centers, MDA Resource Center, Research, Research Advances, Resources, Simply Stated
Episode 45- Making Space and Creating Pathways with Keely Cat-Wells
In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and employment opportunities and…
Tags: College, Community, Education, Employment, Innovation, Relationships, Year of Independence, Young Adults
Ambassador Guest Blog: Advocating for Change at Hill Day
Lily S. is a 17-year-old living with Charcot-Marie-Tooth (CMT) disease. Her passions include disability advocacy, menstrual justice advocacy, and education. Lily lives just outside of Charlotte, NC, where she enjoys traveling with…