Parenting

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Letters from Lily: Advice for Parents of Children with Neuromuscular Disease

By Lily S | November 20, 2025
Action shot of Jake Saxton pumping his left fist with a triumphant look on his face and his mouth open in a yell. He is in a power wheelchair wearing a hockey jersey and knee and shin guards, with a power hockey stick resting in his right hand.
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Meet Our 2025 MDA Quest Photo Contest Winners

By MDA Staff | November 14, 2025
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MDA Ambassador Guest Blog: How Finding Community Helped Me Face the Fear of Having My Son Tested for CMT

By Kevin Crowley | November 12, 2025
Team of professional doctors and nurses examining newborn baby at the hospital. Healthcare and medicine concept.
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MDA Advocacy Team Reports Updates in Newborn Screening Legislation

By Paul Melmeyer | September 4, 2025
Portrait of little boy sitting in wheelchair at the library
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Head Back-to-School in Style with Adaptive Fashion

By Rebecca Hume | September 3, 2025
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Life with Lily: The Right to Access My Education Fully

By Lily S | August 21, 2025
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MDA Ambassador Guest Blog: Parenting, LGMD, and Choosing Joy

By Chris Carroll | July 21, 2025
A dad in a wheelchair wearing glasses smiles down at the young child he is holding in his lap
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The Joys (and Lessons) of Fatherhood from MDA Ambassadors

By Rebecca Hume | June 10, 2025
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
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In Case You Missed It…

By MDA Staff | March 8, 2025
A family of four, consisting of a mother holding a toddler boy and a father holding his daughter’s hand, poses in an outdoor setting.
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4 Key Ways to Support Siblings of Kids with Neuromuscular Diseases

By Amy Bernstein | February 28, 2025