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In Case You Missed It…

By MDA Staff | Wednesday, October 8, 2025

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

MDA Ambassador Guest Blog: Life Lessons from My Service Dog (and Best Friend)

MDA Ambassador Lyza is a law student living with spinal muscular atrophy (SMA) and her service dog, Jewel, has been by her side for over a decade. From childhood hospital stays to law school lectures, Jewel has comforted, motivated, and transformed Lyza’s life. She shares their incredible story of love, strength, and unbreakable companionship. Read more.

Community Voices: Disability is Not a Disappearing Act

Chase the Entertainer, a Native American magician living with essential tremor and congenital myasthenic syndrome, is turning every stage into a place of honesty, humor, and strength. He shares how he doesn’t try to hide his disability, instead he “paints it red”. With laughter, with pride, and with a little sleight of hand, he invites all of us to own our stories too. Read more.

In case you missed it… Quest Podcast:

Episode 56: Precision Medicine – Mapping the Genetic Code for New Treatments

In this Quest Podcast episode, we chat with Dr. Stephan Züchner, Dr. Conrad “Chris” Weihl, and the Interim Chief Research Officer of the Muscular Dystrophy Association, Dr. Angela Lek. Leaders in the field of genetic mapping, all three have devoted their time and expertise to research and treatments for neuromuscular diseases. Their goal is to map the genome for neuromuscular diseases, develop successful treatments, and ultimately find a cure for those effected by neuromuscular diseases. These specialists join us to share their experiences, expertise, and advice. Listen here.

In case you missed it…Quest Magazine 2025 Issue 3, Featured Content:

Neuromuscular Disease Research: Going Strong

MDA was founded on the hope for a better future for people with neuromuscular diseases. 75 years later, we continue to drive progress. Here, we take a look back through the decades at MDA’s impact on NMD research, hope in action through a continuously developing treatment landscape, and how we are building momentum as we look forward to the future. Read more.