In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

How One Man with DMD is Using His Medical Emergency Experience to Educate Others

Zach Fine and his family know firsthand how imperative it is to have an advocate to educate and fight for your needs while receiving medical care. Zach broke his femur two years ago and experienced severe complications during his emergency hospital stay. Now, he is using that experience as motivation to raise awareness about necessary considerations in emergency medical care for people living with neuromuscular disease. Read more. 

Respiratory Support Makes a Big Difference: Community Perspectives on Using a Ventilator

Respiratory experts and community members who are using breathing devices debunk the misconception that ventilation signals the final stage of NMD. Instead crediting ventilator and other respiratory equipment with enabling freedom and mobility in the home and on the go – while providing more energy to enjoy it. Read more. 

MDA’s Guide to the Affordable Care Act (ACA)

The ACA, also called Obamacare, improves access to affordable health insurance for people with preexisting conditions, including neuromuscular diseases. Learn how the ACA works, who it protects, key components, and how to assert your rights. Read more.

In case you missed it…Quest Magazine 2026 Issue 2, Featured Content:

Considerations and Tips to Plan for Pregnancy with a Neuromuscular Disease

Every pregnancy journey is unique. For moms-to-be living with neuromuscular diseases, the journey often involves a lot of questions, some extra preparation, and a coordinated care team. Read more.