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Jada and Bryan Bafus The Bafus family’s YouTube Channel started as a means to provide updates with close friends and family regarding their two sons’ Duchenne muscular dystrophy (DMD)), but…

In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tips, tricks, tools, and products from experts and members of the neuromuscular disease community to help you live independently with a disability.

Rigo is an artist who studied at the Art Institute of Dallas. Although he has dealt with many challenges due to living with a neuromuscular disease, he likes to focus…

GNE myopathy is an inherited neuromuscular disease (NMD) characterized by progressive atrophy (thinning) of the skeletal muscles. GNE myopathy was previously called hereditary inclusion body myopathy (HIBM) or Nonaka myopathy…

Justin Lopez is 30 years old. He currently lives in Toledo, Ohio, but originates from Farmington Hills, Michigan. Justin was diagnosed with Limb-girdle Muscular Dystrophy (LGMD 2B) at the age…

Beach destinations are recognizing that people with disabilities want to travel to accessible beaches. Here’s how to plan a wheelchair-friendly beach vacation.

Over the past few months, we’ve witnessed two significant milestones in the history of disability rights law. In May, we were invited to attend an announcement marking the finalization of…

Summertime often brings to mind sunshine, blue skies, cook-outs, yard games…and swimming! Having fun in the pool is a refreshing way to get exercise, socialize or relax, and cool off…