Steinert Disease

Steinert disease, also called myotonic dystrophy, is a form of muscular dystrophy that affects muscles and many other organs in the body.

Heather Nightingale, a woman with long dark brown hair and light skin, sits in a comfortable chair next to a wall painted with a mural of rolling green hills dotted with white flowers.
Featured Article

Nature Lover With Myotonic Dystrophy Paints a Room With a View

By MDA Staff | May 9, 2024
Disabled man on wheelchair with his dog on a trip in nature.
Blog Post

Coping With a Difficult Diagnosis: Your Emotions Are Normal

By Claire Sykes | April 23, 2024
Emily Blume sits on a boat holding a wineglass.
Featured Article

My Myotonic Dystrophy Journey

By Emily Blume | November 20, 2023
Doctor Using Stethascope on a Baby
Blog Post

Understanding Hypotonia or Low Muscle Tone in Infants

By Myrna Traylor | August 15, 2023
Illustration of DNA
Blog Post

Simply Stated: What Is Neuromuscular Disease?

By Amy Bernstein | June 8, 2022
Blog Post

Clinical Trial Alert: Phase 2/3 Study of Tideglusib (AMO-02) in Children and Adolescents with Congenital Myotonic Dystrophy

By Sujatha Gurunathan | November 9, 2021
Blog Post

Clinical Trial Alert: Expansion Therapeutics Seeks Participants for a Phase 1 DM1 Study

By MDA Staff | February 18, 2020
Blog Post

MDA Grants Charles Thornton More Than $1 Million in New Funding to Continue Supporting the Myotonic Dystrophy Clinical Research Network

By Jeanene Swanson | October 25, 2019
Blog Post

MDA Awards 25 Grants Totaling More Than $6.6 Million for Neuromuscular Disease Research

By Jeanene Swanson | September 5, 2019
Blog Post

“How Muscular Dystrophy Changed my Life”: A Diagnosis that Led to an Incredible Cross-Country Journey

By Jon Olson | August 21, 2019