In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

MDA Ambassador Guest Blog: Embracing Resilience and Navigating Life’s Unexpected Turns

Sorayda Rivera, a 37 year old Ambassador who lives with SMA, shares her experience making difficult decisions, prioritizing her health, and recognizing when to change course. She offers keen insight into overcoming challenges, changing gears as her disease progresses, and re-focusing on self care and the things that bring her joy.  Read more. 

Behind the Drug: Tofersen (Qalsody) for ALS

The story behind how Qalsody went from a concept in a lab to an approved therapy on the market shows that drugs for rare diseases and small patient populations can have a path forward. Read more.

In case you missed it… Quest Podcast:

Episode 39: Behind the Scenes: A Look at the Science and Research for New Treatments

In this Quest Podcast episode, we chat with geneticist, Dr. Jeffrey Chamberlain and the Chief Research Officer of the Muscular Dystrophy Association, Dr. Sharon Hesterlee.  Both have devoted their time and expertise to create and move forward research and treatments for neuromuscular diseases.  Their goal is to create successful treatments and eventually a cure for those effect by neuromuscular diseases. These specialists join us to share their experiences, expertise, and advice. Listen here.

In case you missed it…Quest Magazine 2024 Issue 4, Featured Content:

Stress-Free Holiday Entertaining

From Hanukkah to Christmas to Kwanzaa, the holidays bring family and friends together with festivity, food, and fun. It also can be one of the most stressful times of the year for many people, especially when you’re hosting and you have a neuromuscular disease. Follow these recommendations from community members and experts to minimize your holiday hosting stress — and remember why you’re having that party in the first place. Read more.