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Researchers at PathMaker Neurosystems Inc. are seeking individuals living with amyotrophic lateral sclerosis (ALS) to participate in a feasibility study to evaluate the safety and tolerability of an investigational neuromodulation…

From major legislative and regulatory progress on crucial issues, to our in-person Hill Day in Washington, D.C., 2023 has truly been a landmark year for MDA advocates. Because of your…

MDA Events bring community members, advocates, volunteers, sponsors, and MDA staff together as they gather for a cause and celebrate community. In-person events offer attendees and volunteers a powerful opportunity…

A guide to diagnostic tests most commonly used when there are symptoms of a neuromuscular disease.

Learn when a clinical or genetic diagnosis is better for diagnosing muscular dystrophy and other neuromuscular diseases.

Don Talley is a wheelchair user who has flown over one million miles. In March of 2023, I boarded a United flight from San Diego, California to Denver, Colorado. It…

Hello MDA Families and Friends, As we reflect on the closing of 2023, our hearts are filled with immense pride, gratitude, and a deep sense of connection with each of…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Amy Shinneman. Amy feels that connecting and sharing her story with others through MDA…

Leigh syndrome is a rare, neurodegenerative disorder caused by defects in the mitochondria, the energy-producing structures within our cells. This disorder often begins in infancy or early childhood and causes…