Caregiving

muscular dystrophy survey
Blog Post

Research Study Alert: Survey for People with Muscular Dystrophy and Their Caregivers about Quality of Life

By MDA Staff | April 7, 2022
war in ukraine
Blog Post

Living Through War in Ukraine with a Neuromuscular Disease

By Larry Luxner | March 22, 2022
Blog Post

Self-Care for the New Year

By Rebecca Hume | January 6, 2022
Blog Post

Aging and Neuromuscular Disease Share Symptoms – and Solutions

By Shaila Wunderlich | September 10, 2021
Blog Post

Research Study Alert: Survey for Caregivers of Children with SMA to Study Treatment Decision Making

By MDA Staff | July 30, 2021
stock image of a will and power of attorney
Featured Article

Advance Healthcare Directives: Make Your Wishes Known

By Donna Albrecht | March 26, 2021
Blog Post

Research Study Alert: Survey on the Mental Health Experience of Parents and Guardians of Children With DMD

By MDA Staff | January 27, 2021
Blog Post

10 Tips for Finding Personal Care Attendants

By Lindsey Baker | November 10, 2020
The Sweeney Family
Blog Post

Queer Eye’s “Silver Lining” Sweeneys Stay in the Moment

By Lindsey Baker | November 5, 2020
Blog Post

A Letter from Case Worker Jana Unislawski to the MDA Community: How to Create an Emergency Care Plan for the COVID-19 Era

By Jana Unislawski | June 5, 2020