Archives
MDA Ambassador Guest Blog: Technology as a Tool for Independence
Kareem Azzazi is a 38-year-old content creator from Minnesota living with Duchenne Muscular Dystrophy. He uses eye-tracking technology to write, stream, play games, and create content online as TheSaturverse. Kareem…
Donnie Demers: The Man Behind the Music
Donnie Demers performing at the Global Green Pre-Oscar Gala (Photo from Donnie’s Facebook page) When looking at the list of accomplishments and accolades that musician and multi-platinum selling song-writer Donnie…
Tags: Community
MDA’s Guide to the Air Carrier Access Act
How the Air Carrier Access Act (ACAA) gives people with disabilities the right to air travel and protects people who fly with wheelchairs and scooters.
Tags: Accessible Air Travel, Disability Legislation, Featured Content, MDA Resource Center, Resources, Travel
How to Find an Accessible Obstetrician-Gynecologist (OB/GYN)
Questions about equipment, transfers, positioning, and telehealth can help women with neuromuscular diseases find accessible OB/GYN care that fits well.
Understanding Myotubular Myopathy (MTM)
Neurologist Perry Shieh, MD, PhD, answers questions about myotubular myopathy, its symptoms, diagnosis, and the search for safer gene therapy.
Attorney Ed Barocas Lives with a Sense of Justice and a Sense of Humor
Civil rights attorney and musician Ed Barocas shares how disability advocacy, creativity, and embracing mobility equipment shaped his success.
Tags: Employment, Quest for Success
Progress Now: Enrolling Clinical Trial Updates
Explore enrolling clinical trials for ALS, DMD, Friedreich ataxia, myasthenia gravis, myotonic dystrophy, and Pompe disease.
Tags: Clinical Trials, Research
From Research to Reality: Meet 2 Researchers Driving Drug Development Progress
MDA funding supports researchers at different career stages as they explore better gene therapies and possible treatments for neuromuscular diseases.
Tags: A Look Inside, Drug Development, Gene Therapy, Grants, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances
Key Disability Rights Laws Shape Accessibility Across Daily Life
Federal disability rights laws that support accessibility in buildings, air travel, technology, education, work, healthcare, housing, and voting.
Tags: Accessible Air Travel, Disability Legislation, Education, Employment, Featured Content, Healthcare, Resources, Technology, Travel
Funny Pages: Comic Strip Helps Others See the Person in the Wheelchair
When Sandy Gilbreath’s son, who lives with spinal muscular atrophy (SMA), started school in the 1990s, she noticed how his classmates reacted. “Some of the kids didn’t see him; they…
Tags: Community, Lasting Impression, Parenting