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Blog Post | Independence, Personal Stories

MDA Ambassador Guest Blog: Technology as a Tool for Independence

Kareem Azzazi is a 38-year-old content creator from Minnesota living with Duchenne Muscular Dystrophy. He uses eye-tracking technology to write, stream, play games, and create content online as TheSaturverse. Kareem…

Tags: Ambassador Guest Blog, Ambassadors, Mental Health, Resources, Young Adults


Blog Post | Independence, Lifestyle, News, Personal Stories

Donnie Demers: The Man Behind the Music

Donnie Demers performing at the Global Green Pre-Oscar Gala (Photo from Donnie’s Facebook page) When looking at the list of accomplishments and accolades that musician and multi-platinum selling song-writer Donnie…

Tags: Community


Blog Post | Advocacy, Inclusion, Independence

MDA’s Guide to the Air Carrier Access Act

How the Air Carrier Access Act (ACAA) gives people with disabilities the right to air travel and protects people who fly with wheelchairs and scooters.

Tags: Accessible Air Travel, Disability Legislation, Featured Content, MDA Resource Center, Resources, Travel


Featured Article | Health, Inclusion

How to Find an Accessible Obstetrician-Gynecologist (OB/GYN)

Questions about equipment, transfers, positioning, and telehealth can help women with neuromuscular diseases find accessible OB/GYN care that fits well.

Tags: Equipment and Assistive Devices, Healthcare, Thrive 365, Young Adults


Featured Article | Science + Research

Understanding Myotubular Myopathy (MTM)

Neurologist Perry Shieh, MD, PhD, answers questions about myotubular myopathy, its symptoms, diagnosis, and the search for safer gene therapy.

Tags: Clinical Trials, Gene Therapy, MDA Care Centers, Research, Spotlight


Featured Article | Advocacy, Independence, Personal Stories

Attorney Ed Barocas Lives with a Sense of Justice and a Sense of Humor

Civil rights attorney and musician Ed Barocas shares how disability advocacy, creativity, and embracing mobility equipment shaped his success.

Tags: Employment, Quest for Success


Featured Article | Science + Research

Progress Now: Enrolling Clinical Trial Updates

Explore enrolling clinical trials for ALS, DMD, Friedreich ataxia, myasthenia gravis, myotonic dystrophy, and Pompe disease.

Tags: Clinical Trials, Research


Featured Article | Science + Research

From Research to Reality: Meet 2 Researchers Driving Drug Development Progress

MDA funding supports researchers at different career stages as they explore better gene therapies and possible treatments for neuromuscular diseases.

Tags: A Look Inside, Drug Development, Gene Therapy, Grants, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances


Featured Article | Advocacy, Inclusion, Independence

Key Disability Rights Laws Shape Accessibility Across Daily Life

Federal disability rights laws that support accessibility in buildings, air travel, technology, education, work, healthcare, housing, and voting.

Tags: Accessible Air Travel, Disability Legislation, Education, Employment, Featured Content, Healthcare, Resources, Technology, Travel


Featured Article | Lifestyle, Personal Stories

Funny Pages: Comic Strip Helps Others See the Person in the Wheelchair

When Sandy Gilbreath’s son, who lives with spinal muscular atrophy (SMA), started school in the 1990s, she noticed how his classmates reacted. “Some of the kids didn’t see him; they…

Tags: Community, Lasting Impression, Parenting