Archives

Tips to cope and live with hope when your child is diagnosed with muscular dystrophy or any neuromuscular disease.

Summer Nagele with one of her many Special Olympics medals. Summer Nagele is intent on sharing her gifts and talents with the world. The 19-year-old activist, advocate, and athlete has…

You’re not alone when coping with a diagnosis of muscular dystrophy or neuromuscular disease. Here are tips for handling your feelings and finding resources to live well.

Living in Pennsylvania with her son, Victoria is an active volunteer with her local newspaper, parent-teacher organization, and LGMD News magazine as an Assistant Editor. Her social media accounts are a…

In today’s fast paced world, we often forget to take care of ourselves.  We focus so much on helping others that we often tend to put our own feelings and…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Researchers at the University of Pittsburgh are seeking adults living with Becker muscular dystrophy (BMD) to participate in a phase 2 double-blind, placebo-controlled study to evaluate the safety and efficacy of…

Travis Rasmussen is 30 years old. He lives in Wisconsin, but will soon move to Virginia to live with his brother, Tyler. Travis was diagnosed with spinal muscular atrophy (SMA)…

Researchers at the Center for Health + Technology at the University of Rochester are seeking individuals with Duchenne muscular dystrophy (DMD) and their adult caregivers to participate in observational REDCap surveys,…

In this Quest Podcast episode, we chat with geneticist, Dr. Jeffrey Chamberlain and the Chief Research Officer of the Muscular Dystrophy Association, Dr. Sharon Hesterlee.  Both have devoted their time…