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MDA Summer Camp provides one magical week each year where children living with neuromuscular disease can gain independence, try new activities, make friends, laugh, sing, smile, grow, and just have…

Hello. Leah Z. hitting a punching bag In today’s letter, I will be sharing the many reasons why physical activity is so important to me.  I’m not sure you know…

Sometimes we think we have life figured out but then in the blink of an eye things can change.  I lived 30 years of my life healthy and active.  Sports,…

Over the past decade, medical and scientific advances have increased overall health and life expectancy in people with spinal muscular atrophy (SMA). SMA causes progressive muscle weakness in affected individuals…

Learn why accessible playgrounds and inclusive playgrounds are good for everyone, how to find them, and how to advocate for them in your community.

Researchers at Biogen are seeking adults with a certain confirmed mutation in the superoxide dismutase 1 (SOD1) gene, who are not yet experiencing symptoms of ALS, to participate in a phase…

More than ever, people with neuromuscular diseases can be optimistic about finding a career path after high school. Here are top strategies for thinking about what’s next.

Limited range of mobility, muscle weakness, contractures, and general muscle fatigue can often introduce challenges when it comes to independently completing daily tasks. Individuals living with neuromuscular disease are sometimes…

There is so much to do to help improve the lives of the neuromuscular community and their families. Although MDA works tirelessly to change and improve public policy to truly…

A look at various neuromuscular diseases that can cause hypotonia, or floppy infant syndrome, in babies and how to get a diagnosis.