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MDA Engage Symposiums are Back in Full Swing
MDA Engage Symposiums returned in 2023 offering the neuromuscular disease community an opportunity to connect with one another in person and learn directly from expert clinicians about topics related to…
My Gene Therapy Journey: The Bafus Family
Jada and Bryan Bafus The Bafus family’s YouTube Channel started as a means to provide updates with close friends and family regarding their two sons’ Duchenne muscular dystrophy (DMD), but…
Episode 43- Disrupting the Narrative
In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This…
Tags: Community, Mental Health, Relationships, Young Adults
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Living Independently with a Disability
Tips, tricks, tools, and products from experts and members of the neuromuscular disease community to help you live independently with a disability.
Tags: Ambassadors, College, Equipment and Assistive Devices, Featured Content, Ira, Parenting, Resources, Travel
MDA Ambassador Guest Blog: Celebrating and Supporting LGBTQ+
Rigo is an artist who studied at the Art Institute of Dallas. Although he has dealt with many challenges due to living with a neuromuscular disease, he likes to focus…
Simply Stated: Updates in GNE Myopathy
GNE myopathy is an inherited neuromuscular disease (NMD) characterized by progressive atrophy (thinning) of the skeletal muscles. GNE myopathy was previously called hereditary inclusion body myopathy (HIBM) or Nonaka myopathy…
Tags: Simply Stated
MDA Ambassador Guest Blog: Embracing Inclusive Venues and Adventures
Justin Lopez is 30 years old. He currently lives in Toledo, Ohio, but originates from Farmington Hills, Michigan. Justin was diagnosed with Limb-girdle Muscular Dystrophy (LGMD 2B) at the age…
Find Accessible Beaches for Summer Fun
Beach destinations are recognizing that people with disabilities want to travel to accessible beaches. Here’s how to plan a wheelchair-friendly beach vacation.
Tags: Featured Content, Staying Active, Travel
Celebrating Recent Significant Milestones in Disability Rights
Over the past few months, we’ve witnessed two significant milestones in the history of disability rights law. In May, we were invited to attend an announcement marking the finalization of…
Tags: Advocacy Updates