Finding a Diagnosis

Headshot of Leah Zelaya, a teenage girl with long brown hair wearing a blue turtle neck against a tan background
Blog Post

MDA National Ambassador Blog-Letters From Leah: What I’d Like Parents to Know About Being a Teenager with a Disability

By Leah Z. | February 24, 2023
Closeup of an unclothed infant lying on its side on a white blanket while an adult hand holds a stethoscope to its chest.
Featured Article

Q&A: Understanding Congenital Muscular Dystrophy

By MDA Staff | February 16, 2023
Illustration of a medical office, with a man in a white lab coat standing holding a clipboard, a man sitting in a wheelchair, and a woman in scrubs pushing the wheelchair.
Featured Article

MDA Care Centers: A National Network of Expert Care

By MDA Staff | February 16, 2023
Blog Post

Access to Neuromuscular Disease Care for Black People and People of Color

By Myrna Traylor | February 1, 2023
Scientist examines DNA models on a lab screen
Blog Post

Simply Stated: Updates in Oculopharyngeal Muscular Dystrophy (OPMD)

By Sujatha Gurunathan | January 26, 2023
Headshot of Aimee Zehner, a white woman with curly, light brown hair wearing cat-eye, rhinestone-tipped glasses.
Blog Post

Navigating the Long Journey to a Rare Disease Diagnosis

By Shaila Wunderlich | January 18, 2023
3 separate human skeletal clipart images are set in blue: a hand, with a red target indicating wrist contractures; a bent elbow, with a red target indicating elbow contractures; and a foot, with a red target indicating ankle contractures.
Featured Article

Q&A: Understanding Bethlem Myopathy

By MDA Staff | November 18, 2022
Blue double helix DNA strands against black background
Blog Post

Simply Stated: Research Updates in Congenital Muscular Dystrophy (CMD)

By Sujatha Gurunathan | October 26, 2022
A doctor's gloved hand holds an image of the human torso with bones and muscles outlined in blue
Blog Post

Simply Stated: Updates in LGMD Research

By Sujatha Gurunathan | September 29, 2022
Illustration of muscles in the face and shoulders
Featured Article

Q&A on Facioscapulohumeral Muscular Dystrophy

By MDA Staff | August 23, 2022