Finding a Diagnosis

Shiny silver broken heart that shines in the middle
Featured Article

Learning to Manage the Grief of a Progressive Disease

By Barbara and Jim Twardowski, RN | May 18, 2023
Current, occurring, or functioning state within a cell. Cell functions. 3D illustration
Blog Post

Understanding Nutrition and Metabolic Disease

By MDA Staff | May 17, 2023
Mature Asian man doctors medical results during consultation on tablet computer with woman patient in health clinic. Medical health care concept.
Blog Post

Why Is It So Hard to Get a Diagnosis?

By Shaila Wunderlich | May 11, 2023
Motor neuron connecting to muscle fiber, 3D illustration. A neuromuscular junction allows the motor neuron to transmit a signal to the muscle causing contraction. It is affected by toxins and diseases
Blog Post

Simply Stated: Research Updates in Emery-Dreifuss Muscular Dystrophy (EDMD)

By Sujatha Gurunathan | April 28, 2023
Blog Post

Simply Stated: Elevated Enzymes

By Sharon Hesterlee, Evrim Atas, and Angela Lek | April 6, 2023
Digital background depicting innovative technologies in genetic research
Blog Post

Simply Stated: Research Updates in Pompe Disease

By Sujatha Gurunathan | March 29, 2023
Side view of two happy women in wheelchairs talking and smiling outdoors. Background of green summer park.
Blog Post

MDA Peer Connections Program Creates Lasting Friendships

By Sara, Care Specialist | March 24, 2023
3d rendered image shown neuromuscular junction, where nerve end splits into several neural end plates on different muscle cells.
Blog Post

Simply Stated: Research Updates in Facioscapulohumeral Muscular Dystrophy (FSHD)

By Sujatha Gurunathan | February 28, 2023
Headshot of Leah Zelaya, a teenage girl with long brown hair wearing a blue turtle neck against a tan background
Blog Post

MDA National Ambassador Blog-Letters From Leah: What I’d Like Parents to Know About Being a Teenager with a Disability

By Leah Z. | February 24, 2023
Closeup of an unclothed infant lying on its side on a white blanket while an adult hand holds a stethoscope to its chest.
Featured Article

Q&A: Understanding Congenital Muscular Dystrophy

By MDA Staff | February 16, 2023