Archives
MDA Ambassadors Share Their Favorite Life Hacks
Tips and tricks for everyday problem-solving from people living with muscular dystrophy and other neuromuscular diseases.
Tags: Ambassadors, Community, Equipment and Assistive Devices, Featured Content, Resources, Thrive 365
Understanding Myositis
Neuromuscular neurologist, Tahseen Mozaffar, MD, provides insight on understanding the complexities of the disease, Myositis.
Adapting to Employment Challenges and Finding Solutions
A.J. Bardzilowski, who lives with a rare double diagnosis, shares how he adapted to physical challenges in his career.
Tags: Employment, Equipment and Assistive Devices, Featured Content, MDA Care Centers, Quest for Success, Technology
Wheelchair Costume: Voodoo King and Queen Win Halloween
Patricia Perez made an award-winning wheelchair Halloween costume with a little help from her husband and friends.
Embracing My Differences and Advocating for the Disability Community
Olivia Holler’s experiences made her want to embrace her differences and help others understand life with a disability.
Tags: College Experience, Education, Featured Content, From Where I Sit, Summer Camp, Transitions, Young Adults
A Deep Dive Into MDA’s Ambassador Program
MDA’s Ambassador Program brings authentic voices and lived experiences from the neuromuscular disease community to the forefront.
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
My Gene Therapy Journey: The Graves Family
Kody Graves and Sydney Knobel-Graves When Sydney Knobel-Graves and Kody Graves became first-time parents in July of 2019, they quickly realized that the timing of their daughter Kenzie’s birth would…
Tags: Gene Therapy, Healthcare, MDA Care Centers, My Gene Therapy Journey, Newborn Screening, Parenting
MDA Ambassador Guest Blog: How Technology Changed My Life – and Future
Luke Hennessy lives in Prior Lake, Minnesota, and has SMA Type 2. He is studying Pre-Law with a major in Computer Information Systems and a minor in Political Science at…
Tags: Ambassador Guest Blog, Ambassadors, College, College Experience, Community, Employment, Relationships, Young Adults
2025 MDA Clinical & Scientific Conference Registration is Open
What? When? Where? Exciting news! The 2025 MDA Clinical & Scientific Conference prospectus is now available, and registration is open! Join us from March 16-19, 2025, at the Hilton Anatole…