Archives
Why You Should Practice Shared Healthcare Decision-Making
Practicing shared decision-making with your healthcare provider helps you steer your care journey with confidence
Stem Cell Innovations Drive Advances in Muscle Regeneration
MDA plays a key role in a new frontier of medicine looking into how to regenerate muscles lost to neuromuscular disease.
Tags: Clinical Trials, Featured Content, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances
Ready to Work: How People with Disabilities Balance Benefits and Employment
How disability benefits are affected by employment and how to work with eligibility and income restrictions.
Tags: Employment, Featured Content, Insurance, Young Adults
4 Key Ways to Support Siblings of Kids with Neuromuscular Diseases
When a child is diagnosed with a neuromuscular disease, it impacts siblings, too. Here’s how to help them cope and build resilience.
2024 MDA Advocacy Collaboration Grantees are Working Towards Change
Advocacy for the neuromuscular disease community is just one of the key ways MDA works to support the neuromuscular disease community. To expand our impact and undertake projects of importance…
Tags: Advocacy Updates, MDA Advocacy
MDA Ambassador Guest Blog: The Intersectionality of Identities as a Black Woman Living with a Disability
Gabrielle Runyon is a 22-year-old Kentucky native who currently goes to the illustrious Tennessee State University. She is obtaining her master’s in counseling with a concentration in clinical mental health.…
Tags: Ambassador Guest Blog, Ambassadors, College, College Experience, Community, Education, Relationships, Young Adults
Quest Podcast: Living with Intention and Creating a More Beautiful Life
In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals…
Tags: Caregiving, Community, Mental Health, Relationships
Championing for Change: MDA’s 2025 Advocacy Agenda
With a new Congress and Administration in office, it’s safe to say that 2025 is going be a year full of change. But what remains consistent is MDA’s commitment to…
MDA Ambassador Guest Blog: Music is the Best Medicine
Richard Fry is an aspiring writer and poet. He is first and foremost a musician. Through writing and folk music, Richard strives to inspire admiration for the innate beauty of…
Celebrating a Milestone Year in MDA Advocacy
From major wins to improve air travel for people living with disabilities to ensuring the neuromuscular community had all the resources needed to vote in this year’s election, 2024 was…