Archives

November is National Family Caregivers Month, and it is important to MDA to uplift the importance of family caregivers in the neuromuscular community. Due to decades of underinvestment in paid…

Four family caregivers share the everyday ways they incorporate self-care into their lives, so they can care for their loved ones.

Follow these tips to save money in your budget when you’re balancing health and disability-related expenses.

Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases

When you have access to gene therapy for a neuromuscular disease, weigh the risks and benefits for yourself or your child in your decision-making.

From strict Medicaid asset limits to frequent medical expenses to underpublicized public programs, families with disabilities can feel like they are walking a financial tightrope trying to balance it all.…

Learn expert-backed strategies for family caregivers to prevent injuries, protect their well-being, and care for their loved one safely.

MDA supports 300+ neuromuscular diseases, uniting rare disease communities and driving research, advocacy, and care under one umbrella.

Expanded access (compassionate use) helps patients access promising treatments when no other options exist. Learn how this process works.

Neuropathy ataxia and retinitis pigmentosa (NARP) syndrome is a rare, maternally-inherited condition caused by mutations in mitochondrial DNA, affecting the energy-producing structures within cells. The condition typically begins in childhood…