Archives

Summer is around the corner! In this Quest Podcast episode, we chat with two renowned travel writers who live with physical disabilities. Sylvia Longmire, creator of the Spin the Globe…

Doctors explain why it can take a long time to get a diagnosis for a neuromuscular disease and what you can do about it.

Leah (right) and her mother, Bevi (left) Dear Mothers, There is truly NO person in this world like a Mother. I can’t think of anyone who will stop the world…

Women with neuromuscular diseases and other disabilities have the same needs for gynecologic exams, contraception, and pregnancy-related care as any other woman.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Researchers at Biogen are seeking individuals with amyotrophic lateral sclerosis (ALS) to participate in a phase 1/2 clinical trial (ALSPIRE) to evaluate the safety, effectiveness, and pharmacological properties of the investigational…

Researchers at Rice University are seeking working parents of children living with Duchenne muscular dystrophy (DMD) to participate in a survey about their experiences. The goal is to evaluate whether organizational resources…

In order to prepare for drug development in the neuromuscular disease (NMD) field, some researchers are focusing on natural history studies to better understand these rare diseases. Natural history studies…

Emery-Dreifuss muscular dystrophy (EDMD) is a rare genetic disorder that affects muscle and joint function, and is often associated with cardiac (heart) complications. The exact prevalence of EDMD is unknown,…

Christy Hickman (left) and Peyton (right) have experienced many of the common challenge of finding accessible dental care. From small exam rooms to uncomfortable dental chairs, many dentists’ offices are…