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Cassidy Nilles is 34 years old and lives in Illinois. Cassidy lives with Limb Girdle muscular dystrophy (LGMD) type 2J. She lives with her daughter, Capri, and their 9-year-old maltipoo,…

SELENON (SEPN1)-related myopathy (SELENON-RM) is a rare congenital neuromuscular condition characterized by slowly progressive axial (trunk and head) muscle weakness, early-onset rigidity of the spine, scoliosis (sideways curve of the spine),…

Branden Leimbach is 26 years old. He is a born and raised Nebraskan. Branden was diagnosed with Mitochondrial Myopathy at the young age of 6. He has a degree in…

A national caregiver shortage makes finding in-home caregivers a challenge for people with disabilities. Advocacy can help lead to solutions.

Genes play a role in ALS (Lou Gehrig’s disease), but so do nongenetic risk factors. Here’s what scientists know about what causes ALS.

In this Quest Podcast episode, we chat with a retired US Army veteran and firefighter, Ken Sutcliffe and his wife, Andi. He has devoted his career to saving lives but…

As the weather warms and the days lengthen, there are many different ways to get outside and enjoy the great outdoors. It’s the season of picnics, concerts, park days, and…

In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, TV personality and producer, Sophie Morgan. She devotes her time and expertise to create inclusive spaces for those with…

Tips to cope and live with hope when your child is diagnosed with muscular dystrophy or any neuromuscular disease.

Summer Nagele with one of her many Special Olympics medals. Summer Nagele is intent on sharing her gifts and talents with the world. The 19-year-old activist, advocate, and athlete has…