Archives




Featured Article | Inclusion, Personal Stories

Who You Gonna Call?

A 9-year-old with muscular dystrophy receives a Ghostbusters wheelchair from MDA and Magic Wheelchair.

Tags: Fill the Boot, Lasting Impression


Featured Article | Health, Inclusion

Ask the Resource Center: IEPs and DMD in Women

Q: My son has an individualized education program (IEP) and is in a school that does not meet his needs. What equipment and services should the school provide?  — Enis,…

Tags: Education, Genetic Testing, Healthcare, MDA Care Centers, MDA Q and A, MDA Resource Center, Resources


Featured Article | Finding a Diagnosis, Science + Research

Q&A on Facioscapulohumeral Muscular Dystrophy

Facioscapulohumeral muscular dystrophy treatment and research advances and updates.

Tags: Clinical Trials, Drug Development, Gene Therapy, Healthcare, MDA Care Centers, Research, Research Advances, Spotlight


Featured Article | Advocacy, Inclusion

After-School Activities for All

How to create opportunities at your school to get kids with disabilities involved in extracurricular activities.

Tags: Education, Featured Content, Mental Health, Parenting, Resources, Staying Active


Featured Article | Personal Stories

4 Lessons I Learned From Adaptive Sports

Playing adaptive sports has a positive impact on a man with Becker muscular dystrophy.

Tags: From Where I Sit, Staying Active


Blog Post | Advocacy, Get Involved, News

MDA Announces Advocacy Collaboration Grants Funding Opportunity

There is so much to do to help improve the lives of the neuromuscular community and their families. Although MDA works tirelessly to change and improve public policy to truly…

Tags: Advocacy Updates, Grants


Blog Post | Research, Science + Research

Clinical Trial Alert: Phase 3 Study of IgPro20 in Adults with Dermatomyositis

Researchers partnering with CSL Behring, are seeking adults living with dermatomyositis to participate in a phase 3 clinical trial to evaluate the safety, efficacy, and duration of effect of IgPro20 (human…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | Independence, Lifestyle, Personal Stories

Back-to-(Grad)-School

Is it back to school already? It feels like almost yesterday that I graduated from Worcester Polytechnic Institute (WPI), but even so, I’ll soon be attending Boston University (BU) in…

Tags: Ambassadors, College, Education, Personal Care Attendants, Staying Active, Young Adults


Blog Post | Advocacy, Lifestyle

Ethan LyBrand and Ben Schwartz Share a Laugh for National Tell a Joke Day

Ethan LyBrand loves a good joke. During the start of the COVID-19 pandemic, Ethan embarked on a virtual crusade to bring happiness to the world by sharing a joke a…

Tags: Ambassadors, Community


Blog Post | Advocacy, Finding a Diagnosis, Health, Independence

What is the MDA Resource Center? An Executive Q&A

What is an MDA Care Center?  I’m having symptoms of a muscle disease and I’m not sure what to do or who to talk to.  My child was diagnosed with…

Tags: MDA Care Centers, MDA Resource Center, Resources