Archives
Who You Gonna Call?
A 9-year-old with muscular dystrophy receives a Ghostbusters wheelchair from MDA and Magic Wheelchair.
Tags: Fill the Boot, Lasting Impression
Ask the Resource Center: IEPs and DMD in Women
Q: My son has an individualized education program (IEP) and is in a school that does not meet his needs. What equipment and services should the school provide? — Enis,…
Tags: Education, Genetic Testing, Healthcare, MDA Care Centers, MDA Q and A, MDA Resource Center, Resources
Q&A on Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral muscular dystrophy treatment and research advances and updates.
Tags: Clinical Trials, Drug Development, Gene Therapy, Healthcare, MDA Care Centers, Research, Research Advances, Spotlight
After-School Activities for All
How to create opportunities at your school to get kids with disabilities involved in extracurricular activities.
4 Lessons I Learned From Adaptive Sports
Playing adaptive sports has a positive impact on a man with Becker muscular dystrophy.
Tags: From Where I Sit, Staying Active
MDA Announces Advocacy Collaboration Grants Funding Opportunity
There is so much to do to help improve the lives of the neuromuscular community and their families. Although MDA works tirelessly to change and improve public policy to truly…
Tags: Advocacy Updates, Grants
Clinical Trial Alert: Phase 3 Study of IgPro20 in Adults with Dermatomyositis
Researchers partnering with CSL Behring, are seeking adults living with dermatomyositis to participate in a phase 3 clinical trial to evaluate the safety, efficacy, and duration of effect of IgPro20 (human…
Back-to-(Grad)-School
Is it back to school already? It feels like almost yesterday that I graduated from Worcester Polytechnic Institute (WPI), but even so, I’ll soon be attending Boston University (BU) in…
Ethan LyBrand and Ben Schwartz Share a Laugh for National Tell a Joke Day
Ethan LyBrand loves a good joke. During the start of the COVID-19 pandemic, Ethan embarked on a virtual crusade to bring happiness to the world by sharing a joke a…
Tags: Ambassadors, Community
What is the MDA Resource Center? An Executive Q&A
What is an MDA Care Center? I’m having symptoms of a muscle disease and I’m not sure what to do or who to talk to. My child was diagnosed with…