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Blog Post | Advocacy, Independence, Lifestyle, Personal Stories

Letters from Leah: “Fin” (A Farewell Note)

Dear Friends, What an honor it has been to be one of MDA’s National Ambassadors! I will never forget all the amazing connections and friendships I have made along this…

Tags: Ambassadors, Leah, Letters From Leah


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Ambassador Guest Blog: Cooking Tips & Tricks (Just in Time for the Holidays)

Barbara Ochoa is an animal lover and skilled home chef who lives in California. She loves to spend time with her husband and adult children on their farm and stay…

Tags: Ambassador Guest Blog, Ambassadors, Community, Relationships, Young Adults


Blog Post | Independence, Lifestyle, Science + Research

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Ambassadors, Drug Development, Healthcare, Innovation, Ira, Mental Health, Research, Research Advances


Blog Post | Independence, Lifestyle

Get Cozy with Accessibility and Independence This Winter

With colder temperatures, variable weather conditions for travel, and shorter hours of daylight each day, winter often brings with it the season of spending more time staying inside and cozying…

Tags: Community, Resources


Blog Post | Advocacy, Independence, News

MDA CEO and President Dr. Wood Reflects on 2024: A Year of Milestones and Momentum

Hello MDA Families and Friends, As we approach the close of 2024, it’s a moment for all of us at the Muscular Dystrophy Association (MDA) to reflect on the profound…

Tags: Advocacy Updates, Ambassadors, Community, Drug Development, Fundraising, Gene Therapy, Healthcare, Innovation, MDA Clinical and Scientific Conference, MDA College Scholarships, Research Advances, Summer Camp


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 47- Wrapping up 2024 with Leah and Ira

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate  finishing her second year as a National…

Tags: Ambassadors, Community, MDA Ambassador Program, MDA Ambassadors, Relationships, Young Adults


Blog Post | Advocacy, News

A Year of Progress: Looking Back on the 2024 Changes in Air Travel Accessibility

As 2024 draws to a close, it is worth reflecting on the progress MDA and the disability community achieved this year towards air travel accessibility. From the inclusion of important…

Tags: Accessible Air Travel, Advocacy Updates, Travel


Blog Post | Advocacy, Health, Science + Research, Tools& Resources

Simply Stated: Therapeutic Strategies to Treat DMD

Duchenne muscular dystrophy (DMD) is a rare genetic disorder caused by mutations in the dystrophin gene that lead to loss of the dystrophin protein. People with DMD experience progressive degeneration…

Tags: Simply Stated


Blog Post | Advocacy, Get Involved, Health, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Embracing Resilience and Navigating Life’s Unexpected Turns

Sorayda Rivera is a 37-year-old, first-generation Mexican American woman from Texas living with spinal muscular atrophy (SMA) type 3. Diagnosed at age three, Sorayda has defied expectations, building a life…

Tags: Ambassador Guest Blog, Ambassadors, Community, Education, Employment, Mental Health, Relationships, Young Adults


Blog Post | Finding a Diagnosis, Health

Understanding Creatine Kinase Levels and Testing

Learn more about creatine kinase levels and testing, as well as how this data is used for neuromuscular disease diagnoses.

Tags: Featured Content, Resources