Archives
How to Manage Stress and Fear in Uncertain Times
Stressed about policy and funding changes? Prioritize self-care and follow these strategies to build your resilience in times of uncertainty.
MDA Conference Grants Support Resources to the Community
The Muscular Dystrophy Association (MDA) provides a significant number of research grants each year to scientists working in the field of neuromuscular diseases. But what many may not know is…
Tags: Community, Grants, Healthcare, Innovation, MDA Clinical and Scientific Conference, Research Advances, Resources
Understanding the Threats to the ACL – and What It Means for You
In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic restructuring’ of the Department, including reorganization of the Administration for Community Living (ACL), an agency…
Life with Lily #2: Advocating for Disability Rights
Advocacy doesn’t always look bold or dramatic. Most of the time, it’s quiet, messy, and uncomfortable. Long before the first time I ever walked into a Congressional office to lobby…
Tags: Advocacy Updates, Ambassadors, Community, Life with Lily, Lily, MDA Ambassadors, MDA National Ambassador Blog, Young Adults
How to Plan the Perfect Summer Staycation
As the cost of living continues to rise in the United States, many individuals and families are re-evaluating their budgets. Typically, vacations are among the first things to get cut…
Tags: Community
MDA Ambassador Guest Blog: A Life of Service
Greg Dodson lives in Tennessee with his wife, Mona. He is a US Army Veteran who has logged 3,862 jumps from airplanes! He received a diagnosis of ALS in 2019,…
A Message of Gratitude and Momentum: Leadership Changes at MDA
At the Muscular Dystrophy Association (MDA), we’re marking a major moment in our history. Dr. Donald S. Wood, who has led MDA as President and CEO since 2020, has announced…
Tags: MDA Leadership
How to Maximize Your College Experience by Advocating for Accommodations and Accessibility
Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…
Tags: College, College Experience, Young Adults
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
A Fire Fighter’s Lasting Impact on the Fight Against ALS: Bob McAlvey’s Life & Legacy
Monty Nye The mission to find treatment for amyotrophic lateral sclerosis (ALS) hits especially close to home for fire fighters, with research revealing that they are twice as likely to…
Tags: Community, Fill the Boot, Fundraising, Relationships