Archives
Raising Resilient Kids with Neuromuscular Diseases
People living with neuromuscular diseases share their upbringing and how their parents instilled resilience from a young age.
Tags: Featured Content, MDA Advocacy, MDA Ambassadors, MDA Let's Play, MDA Mentorship, MDA Resource Center, MDA Summer Camp, Mental Health, Parenting, Young Adults
Former MDA Summer Campers Reunite After 14 Years
Former MDA Summer Campers get together after 14 years to reunite and continue their lasting connections.
ReelAbilities Co-Founder Talks Representation on the Big Screen
ReelAbilities Film Festival co-founder Isaac Zablocki talks about disability representation in the entertainment industry.
Tags: A Look Inside, Community, Featured Content
How MDA Can Support You
Read about the many ways MDA engages with and supports families in the neuromuscular disease community.
Tags: Featured Content, Golf Outings, MDA Advocacy, MDA Ambassador Program, MDA Care Centers, MDA Community Education, MDA Connect, MDA Let's Play, MDA Resource Center, MDA Summer Camp, Muscle Walk, Thrive 365, volunteer
What Is the Drug Development Pipeline?
Thousands of potentially beneficial therapies for neuromuscular diseases are being researched and tested in the drug development pipeline.
Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Exon Skipping, Featured Content, Gene Therapy, Innovation, Research
Connecting Over Diagnosis Leads to Lifelong Friendships
Melissa Grove discovers the silver lining of her limb-girdle muscular dystrophy (LGMD) is making friends with others with the same diagnosis.
Updates on LGMD2I/R9
An expert Q&A with Katherine Mathews, MD, on limb-girdle muscular dystrophy 2I/R9 (also called LGMD2I or LGMDR9).
Neuromuscular Disease Researcher Doesn’t Let Dermatomyositis Stop Him
Neuroscientist Stephen Moore, PhD, shares his experience researching neuromuscular diseases and being diagnosed with dermatomyositis.
Physical and Occupational Therapy: What They Can Do for You
Almost every ordinary activity — eating a meal, taking a bath or shower, using the toilet, using a computer, driving a car — can be affected by weakening muscles caused…
CMT and Your Feet: Surgery Sometimes, Bracing Often, Caution Always
Charcot-Marie-Tooth disease (CMT) usually affects the feet, impacting mobility. Experts weigh in on when to consider foot surgery and bracing.