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Blog Post | Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Love in Full Bloom on Camelback Mountain

Doug Clough is 61 years old (OMG) and lives in Gilbert, AZ. Doug has Amyotrophic Lateral Sclerosis (ALS, Lou Gehrig’s disease) and a spinal cord injury (SCI). He uses a…

Tags: Ambassador Guest Blog, Relationships, Staying Active


Blog Post | Lifestyle, Research

International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Dwi U. Kemaladewi

In recognition of International Day of Women and Girls in Science, the Muscular Dystrophy Association (MDA) is honored and excited to highlight the career and accomplishments of Dr. Dwi U.…

Tags: Community, Education, Research


Blog Post | Advocacy, Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Advocacy Updates, Ambassadors, Clinical Trials, Community, In Case You Missed It, Insights by Ira, Ira


Blog Post | Advocacy

MDA Announces Advocacy Collaboration Grant Projects

In exciting news for the neuromuscular disease community, MDA’s Advocacy team has just announced the next recipients of MDA Advocacy Collaboration Grants! Applications opened in August 2023 with a focus…

Tags: Advocacy Updates


Blog Post | Health, Lifestyle, Personal Stories

Is Alternative Medicine Safe for Neuromuscular Disease Symptoms?

People with neuromuscular diseases and doctors discuss how complementary and alternative medicine helps symptoms.

Tags: Featured Content, Healthcare, Staying Active


Blog Post | Health, Science + Research

Research Study Alert: Genome-Wide Association Study in People with MuSK MG

Researchers at George Washington University are seeking individuals living with muscle-specific tyrosine kinase-associated myasthenia gravis (MuSK MG) to participate in a genome-wide association study. The objective of this study is to collect…

Tags: Research Study Alert


Blog Post | Independence, Lifestyle, Personal Stories

Insights by Ira: An Appetite for Independence

Crème Brulee Prepared by Ira Walker Crème Brulee. It’s a creamy French dessert custard that is presented commonly in a small round ramekin. That’s the crème…but what about the brulee?  To…

Tags: Ambassadors, Independence, Insights by Ira, Ira


Blog Post | Get Involved, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Pursuing Personal Passion Day by Day

Diagnosed with myotonic muscular dystrophy in adulthood, Thad is passionate about nature and exploring all that North Carolina has to offer. His newest project is cultivating mushrooms. Sixteen years ago, I…

Tags: Ambassador Guest Blog, Community, Relationships


Blog Post | Advocacy, Get Involved

MDA’s 2024 Advocacy Agenda

As we embark on a new year, MDA’s commitment to changing public policy and truly empowering the neuromuscular community remains the same. MDA advocates accomplished a lot last year,  and…

Tags: Accessible Air Travel, Advocacy Updates, Newborn Screening


Blog Post | Independence, Lifestyle, Personal Stories

Episode 37- How to find Meaning and Fulfillment with Isaac Banks

In this Quest Podcast episode, we chat with one of Muscular Dystrophy Association’s Ambassadors, Isaac Banks about finding fulfillment in our lives as we skyrocket into 2024. As a certified…

Tags: Relationships