Archives

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate  finishing her second year as a National…

As 2024 draws to a close, it is worth reflecting on the progress MDA and the disability community achieved this year towards air travel accessibility. From the inclusion of important…

Duchenne muscular dystrophy (DMD) is a rare genetic disorder caused by mutations in the dystrophin gene that lead to loss of the dystrophin protein. People with DMD experience progressive degeneration…

Sorayda Rivera is a 37-year-old, first-generation Mexican American woman from Texas living with spinal muscular atrophy (SMA) type 3. Diagnosed at age three, Sorayda has defied expectations, building a life…

Learn more about creatine kinase levels and testing, as well as how this data is used for neuromuscular disease diagnoses.

Ally Pack-Adair is 21 years old. She lives in Arizona and was diagnosed with a mitochondrial disease when she was a few weeks old. Ally enjoys arts and crafts, reading,…

In this Quest Podcast episode, we chat with the Kira Cosmetics founder and entrepreneur, Shakiira Rahaman. Shakiira, who lives with muscular dystrophy. founded her make-up line in 2019 after a…

A breakdown of gene editing as a promising therapy for treatment of neuromuscular diseases.

From Hanukkah to Christmas to Kwanzaa, the holidays bring family and friends together with festivity, food, and fun. It also can be one of the most stressful times of the…

How to better understand the neuromuscular disease, myotonic dystrophy (DM) and the latest advancements in treatments.