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In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Accessible Air Travel, Drug Approval, In Case You Missed It, Innovation, Research, Research Advances
Clinical Study Alert: Phase 2 Study of Vamorolone in Adults with BMD
Researchers at the University of Pittsburgh are seeking adults living with Becker muscular dystrophy (BMD) to participate in a phase 2 double-blind, placebo-controlled study to evaluate the safety and efficacy of…
MDA Ambassador Guest Blog: Embracing Adventure (with a Little Help from My Friends)
Travis Rasmussen is 30 years old. He lives in Wisconsin, but will soon move to Virginia to live with his brother, Tyler. Travis was diagnosed with spinal muscular atrophy (SMA)…
Tags: Ambassador Guest Blog, Ambassadors
Episode 39- Behind the Scenes: A Look at the Science and Research for New Treatments
In this Quest Podcast episode, we chat with geneticist, Dr. Jeffrey Chamberlain and the Chief Research Officer of the Muscular Dystrophy Association, Dr. Sharon Hesterlee. Both have devoted their time…
Celebrating the Impact of MDA Volunteers
After an entire year spent celebrating MDA volunteers for the 2023 Year of the Volunteer, MDA is excited to celebrate and recognize our volunteers this National Volunteer Month 2024. The…
Tags: Volunteers, Year of the Volunteer
Clinical Study Alert: Phase 2 Study of Brogidirsen in Boys with DMD
Researchers at NS Pharma are seeking boys with Duchenne muscular dystrophy (DMD) amenable to exon 44 skipping therapy to participate in a phase 2 clinical trial to evaluate the safety, efficacy,…
Advancements in Accessible Air Travel: A Recap of Recent Developments
As the MDA Advocacy Team continues their work to support accessible air travel, we have two exciting efforts to share – one from Congress and one from the U.S. Department…
Clinical Study Alert: A Phase 1/2 Study of Safety and Efficacy of LX2006 Gene Therapy in Adults with Cardiomyopathy Associated with Friedreich Ataxia
Researchers at Lexeo Therapeutics, Inc. (Lexeo) are seeking adults with cardiomyopathy associated with Friedreich ataxia (FRDA) to participate in an open label, dose-ascending, multicenter Phase 1/2 clinical trial, called SUNRISE-FA…
MDA Ambassador Guest Blog: Finding Freedom in Accepting My Disability
Rebecca C. Ball-Schaller, who goes by Becca, is an avid crafter, Christmas fanatic, and cat lover. Her guilty pleasure is watching old horror films. She lives in Pennsylvania with her…
Tags: Ambassador Guest Blog, Ambassadors
Accessible Spring-Cleaning Tools & Tips
For people living with physical disabilities, household tasks and chores can often present their own slew of challenges and barriers. Limitations in mobility, range of motion, energy, and muscle use…