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MDA Guest Ambassador Blog: Focusing on Mental Health
Branden Leimbach is 26 years old. He is a born and raised Nebraskan. Branden was diagnosed with Mitochondrial Myopathy at the young age of 6. He has a degree in…
Tags: Ambassador Guest Blog, Ambassadors, COVID-19, Community, Healthcare, Mental Health, Young Adults
Help! Solutions Needed for Finding In-home Caregivers
A national caregiver shortage makes finding in-home caregivers a challenge for people with disabilities. Advocacy can help lead to solutions.
Nongenetic Factors May Increase Odds of Developing ALS
Genes play a role in ALS (Lou Gehrigβs disease), but so do nongenetic risk factors. Hereβs what scientists know about what causes ALS.
Tags: Featured Content, Research
Episode 41- Courage Kindled: A Heroβs Unbreakable Spirit
In this Quest Podcast episode, we chat with a retired US Army veteran and firefighter, Ken Sutcliffe and his wife, Andi. He has devoted his career to saving lives but…
Tags: Caregiving, Community, Healthcare, Mental Health, Relationships, Resources
Get Outside: Tips for Accessible Outdoor Activities
As the weather warms and the days lengthen, there are many different ways to get outside and enjoy the great outdoors. Itβs the season of picnics, concerts, park days, and…
Tags: Community, Resources, Staying Active
Episode 40- Unlocking Access and Inspiring Action with Sophie Morgan
In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, TV personality and producer, Sophie Morgan. She devotes her time and expertise to create inclusive spaces for those with…
How to Cope When Your Child Is Diagnosed
Tips to cope and live with hope when your child is diagnosed with muscular dystrophy or any neuromuscular disease.
Tags: Community, Community Education, Featured Content, MDA Care Centers, MDA Resource Center, Mental Health, Parenting, Resources
Special Olympic Silver-Medalist Shines Bright in Her Community
Summer Nagele with one of her many Special Olympics medals. Summer Nagele is intent on sharing her gifts and talents with the world. The 19-year-old activist, advocate, and athlete has…
Tags: Community, Fundraising, Staying Active, Young Adults
Coping With a Difficult Diagnosis: Your Emotions Are Normal
Youβre not alone when coping with a diagnosis of muscular dystrophy or neuromuscular disease. Here are tips for handling your feelings and finding resources to live well.
Tags: Community, Community Education, Featured Content, MDA Care Centers, MDA Peer Connections, MDA Resource Center, Mental Health, Resources
MDA Ambassador Guest Blog: The Sailing of a Lifetime
Living in Pennsylvania with her son, Victoria is an active volunteer with her local newspaper, parent-teacher organization, and LGMD NewsΒ magazine as an Assistant Editor. Her social media accounts are a…
Tags: Ambassador Guest Blog, Ambassadors