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What’s the Difference Between a Clinical and Genetic Diagnosis?
Learn when a clinical or genetic diagnosis is better for diagnosing muscular dystrophy and other neuromuscular diseases.
Tags: Featured Content, Genetic Testing
Airplane Travel Tips from a One Million Mile Traveler
Don Talley is a wheelchair user who has flown over one million miles. In March of 2023, I boarded a United flight from San Diego, California to Denver, Colorado. It…
Tags: Accessible Air Travel, Travel
2023 in Review: A Letter from MDA President and CEO, Dr. Wood
Hello MDA Families and Friends, As we reflect on the closing of 2023, our hearts are filled with immense pride, gratitude, and a deep sense of connection with each of…
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Episode 36- Wrapping Up 2023 with Leah and Amy
In this Quest Podcast episode, we chat with Muscular Dystrophy Associationβs National Ambassadors, Leah Z., and Amy Shinneman. Amy feels that connecting and sharing her story with others through MDA…
Tags: Ambassadors, Amy, Community, Genetic Testing, Healthcare, Leah, Mental Health, Relationships, Staying Active, Young Adults
Simply Stated: Research Updates in Leigh Syndrome
Leigh syndrome is a rare, neurodegenerative disorder caused by defects in the mitochondria, the energy-producing structures within our cells. This disorder often begins in infancy or early childhood and causes…
Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Education, Healthcare, Innovation, MDA Care Centers, MDA Resource Center, Research, Resources, Simply Stated
Holiday Traditions to Make Your Season Happier
Holiday traditions are a special way to create meaningful memories while also making the busy holiday season a little happier and brighter. Celebrating special traditions, either on your own or…
Tags: Community
Celebration and Gratitude for the Year of the Volunteer
Wendi Dressen, Senior Director of MDA Volunteer Programs As 2023 draws to a close, we look back on the many opportunities that we have had to recognize, appreciate, and celebrate…
Reflections on Serving as MDA National Ambassador
Amy Shinneman speaking at the MDA Clinical and Scientific conference In some ways it seems the last two years have flown by, and I was just barely getting started serving…
Tags: Ambassadors, Amy, Community, MDA Clinical and Scientific Conference, Relationships, Staying Active
A Thank You to MDA Volunteers for the Incredible Joy and Hope They Spread
During this season of Thanksgiving, and throughout The Year of the Volunteer, MDA strives to acknowledge and honor the incredible impact our volunteers have on the families we serve. MDAβs…