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Blog Post | Finding a Diagnosis, Health

What’s the Difference Between a Clinical and Genetic Diagnosis?

Learn when a clinical or genetic diagnosis is better for diagnosing muscular dystrophy and other neuromuscular diseases.

Tags: Featured Content, Genetic Testing


Blog Post | Inclusion, Lifestyle, Uncategorized

Airplane Travel Tips from a One Million Mile Traveler

Don Talley is a wheelchair user who has flown over one million miles. In March of 2023, I boarded a United flight from San Diego, California to Denver, Colorado. It…

Tags: Accessible Air Travel, Travel


Blog Post | Lifestyle, News

2023 in Review: A Letter from MDA President and CEO, Dr. Wood

Hello MDA Families and Friends, As we reflect on the closing of 2023, our hearts are filled with immense pride, gratitude, and a deep sense of connection with each of…

Tags: Accessible Air Travel, Community, Drug Approval, Gene Therapy, Summer Camp


Blog Post | Advocacy, Health, Inclusion, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: COVID-19, Community, Genetic Testing, In Case You Missed It, Insurance


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

Episode 36- Wrapping Up 2023 with Leah and Amy

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Amy Shinneman. Amy feels that connecting and sharing her story with others through MDA…

Tags: Ambassadors, Amy, Community, Genetic Testing, Healthcare, Leah, Mental Health, Relationships, Staying Active, Young Adults


Blog Post | Finding a Diagnosis, Health, Science + Research

Simply Stated: Research Updates in Leigh Syndrome

Leigh syndrome is a rare, neurodegenerative disorder caused by defects in the mitochondria, the energy-producing structures within our cells. This disorder often begins in infancy or early childhood and causes…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Education, Healthcare, Innovation, MDA Care Centers, MDA Resource Center, Research, Resources, Simply Stated


Blog Post | Lifestyle

Holiday Traditions to Make Your Season Happier

Holiday traditions are a special way to create meaningful memories while also making the busy holiday season a little happier and brighter. Celebrating special traditions, either on your own or…

Tags: Community


Blog Post | Get Involved, Lifestyle

Celebration and Gratitude for the Year of the Volunteer

Wendi Dressen, Senior Director of MDA Volunteer Programs As 2023 draws to a close, we look back on the many opportunities that we have had to recognize, appreciate, and celebrate…

Tags: Community, Relationships, Summer Camp, Volunteers, Year of the Volunteer


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

Reflections on Serving as MDA National Ambassador

Amy Shinneman speaking at the MDA Clinical and Scientific conference In some ways it seems the last two years have flown by, and I was just barely getting started serving…

Tags: Ambassadors, Amy, Community, MDA Clinical and Scientific Conference, Relationships, Staying Active


Blog Post | Get Involved, Personal Stories

A Thank You to MDA Volunteers for the Incredible Joy and Hope They Spread

During this season of Thanksgiving, and throughout The Year of the Volunteer, MDA strives to acknowledge and honor the incredible impact our volunteers have on the families we serve. MDA’s…

Tags: Ambassadors, Community, Relationships, Summer Camp, Volunteers, Year of the Volunteer