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MDA Ambassador Guest Blog: Marv and Me
Dave Leatherman and his Service dog Marv Dave Leatherman is a devoted husband and father from Cedar Rapids, IA, living with MYH7-Myopathy, diagnosed as an adult in Feb. of 2015. …
MDA Volunteer Love Stories
MDA Summer Camp provides one magical week each year where children living with neuromuscular disease can gain independence, try new activities, make friends, laugh, sing, smile, grow, and just have…
MDA National Ambassador Blog-Letters From Leah: The Importance of Physical Activity
Hello. Leah Z. hitting a punching bag In today’s letter, I will be sharing the many reasons why physical activity is so important to me. I’m not sure you know…
Five Things You Should Know When Diagnosed with Neuromuscular Disease
Sometimes we think we have life figured out but then in the blink of an eye things can change. I lived 30 years of my life healthy and active. Sports,…
Deconstructing SMA Types and Treatments
Over the past decade, medical and scientific advances have increased overall health and life expectancy in people with spinal muscular atrophy (SMA). SMA causes progressive muscle weakness in affected individuals…
Tags: Clinical Trials, Drug Development, Healthcare, Research, Research Advances, Resources, Simply Stated
Accessible Playgrounds Give Everyone the Benefits of Play
Learn why accessible playgrounds and inclusive playgrounds are good for everyone, how to find them, and how to advocate for them in your community.
Tags: Community, Featured Content, Parenting, Staying Active
Clinical Trial Alert: Phase 3 Study of Tofersen in Presymptomatic Adults with SOD1 mutation
Researchers at Biogen are seeking adults with a certain confirmed mutation in the superoxide dismutase 1 (SOD1) gene, who are not yet experiencing symptoms of ALS, to participate in a phase…
Beyond High School: Top Strategies for Finding a Career Path
More than ever, people with neuromuscular diseases can be optimistic about finding a career path after high school. Here are top strategies for thinking about what’s next.
Tags: Career Quest, College, Education, Employment, Featured Content, Resources, Transitions, Young Adults
Easy, Expert-Level Life Hacks from an Occupational Therapist
Limited range of mobility, muscle weakness, contractures, and general muscle fatigue can often introduce challenges when it comes to independently completing daily tasks. Individuals living with neuromuscular disease are sometimes…
MDA Announces New Round of Advocacy Collaboration Grants Funding
There is so much to do to help improve the lives of the neuromuscular community and their families. Although MDA works tirelessly to change and improve public policy to truly…
Tags: Advocacy Updates, Grants