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Featured Article | Advocacy, Get Involved, Inclusion, News

Your Vote Matters: Disability Advocates Can Help Change Legislation for the Better

Voters and advocates with disabilities can influence legislation and make positive changeβ€”every voice counts.

Tags: Accessible Air Travel, Advocacy Updates, Featured Content


Featured Article | Health, Science + Research

Are You Ready for Gene Therapy? Here’s What You Need to Know

Researchers expect more gene therapy approvals in the next few years. Learn what to expect and how to access gene therapies.

Tags: Drug Development, Featured Content, Gene Therapy, Genetic Testing, Healthcare, MDA Care Centers, Research


Featured Article | Independence, Lifestyle

MDA Ambassadors Share Their Favorite Life Hacks

Tips and tricks for everyday problem-solving from people living with muscular dystrophy and other neuromuscular diseases.

Tags: Ambassadors, Community, Equipment and Assistive Devices, Featured Content, Resources, Thrive 365


Featured Article | Science + Research

Understanding Myositis

Neuromuscular neurologist, Tahseen Mozaffar, MD, provides insight on understanding the complexities of the disease, Myositis.

Tags: Featured Content, Research, Research Advances, Spotlight


Featured Article | Lifestyle, Personal Stories

Adapting to Employment Challenges and Finding Solutions

A.J. Bardzilowski, who lives with a rare double diagnosis, shares how he adapted to physical challenges in his career.

Tags: Employment, Equipment and Assistive Devices, Featured Content, MDA Care Centers, Quest for Success, Technology


Featured Article | Personal Stories

Wheelchair Costume: Voodoo King and Queen Win Halloween

Patricia Perez made an award-winning wheelchair Halloween costume with a little help from her husband and friends.

Tags: Featured Content, Lasting Impression


Featured Article | Personal Stories

Embracing My Differences and Advocating for the Disability Community

Olivia Holler’s experiences made her want to embrace her differences and help others understand life with a disability.

Tags: Education, Featured Content, From Where I Sit, Summer Camp, Transitions, Young Adults


Featured Article | Get Involved

A Deep Dive Into MDA’s Ambassador Program

MDA’s Ambassador Program brings authentic voices and lived experiences from the neuromuscular disease community to the forefront.

Tags: A Look Inside, Ambassadors, Community, Featured Content, Fill the Boot, Fundraising


Blog Post | Get Involved, Inclusion

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Ambassadors, Community, In Case You Missed It, Simply Stated, Staying Active


Blog Post | Personal Stories

My Gene Therapy Journey: The Graves Family

Kody Graves and Sydney Knobel-Graves When Sydney Knobel-Graves and Kody Graves became first-time parents in July of 2019, they quickly realized that the timing of their daughter Kenzie’s birth would…

Tags: Gene Therapy, Healthcare, MDA Care Centers, Newborn Screening, Parenting