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Blog Post | Advocacy, Get Involved, News

Help! Solutions Needed for Finding In-home Caregivers

A national caregiver shortage makes finding in-home caregivers a challenge for people with disabilities. Advocacy can help lead to solutions.

Tags: Caregiving, Featured Content, Personal Care Attendants


Blog Post | Finding a Diagnosis, Science + Research

Nongenetic Factors May Increase Odds of Developing ALS

Genes play a role in ALS (Lou Gehrig’s disease), but so do nongenetic risk factors. Here’s what scientists know about what causes ALS.

Tags: Featured Content, Research


Blog Post | Advocacy, Finding a Diagnosis, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

Episode 41- Courage Kindled: A Hero’s Unbreakable Spirit

In this Quest Podcast episode, we chat with a retired US Army veteran and firefighter, Ken Sutcliffe and his wife, Andi. He has devoted his career to saving lives but…

Tags: Caregiving, Community, Healthcare, Mental Health, Relationships, Resources


Blog Post | Lifestyle

Get Outside: Tips for Accessible Outdoor Activities

As the weather warms and the days lengthen, there are many different ways to get outside and enjoy the great outdoors. It’s the season of picnics, concerts, park days, and…

Tags: Community, Resources, Staying Active


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 40- Unlocking Access and Inspiring Action with Sophie Morgan

In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, TV personality and producer, Sophie Morgan. She devotes her time and expertise to create inclusive spaces for those with…

Tags: Accessible Air Travel, Community, Employment, Relationships, Staying Active, Travel


Blog Post | Finding a Diagnosis, Health

How to Cope When Your Child Is Diagnosed

Tips to cope and live with hope when your child is diagnosed with muscular dystrophy or any neuromuscular disease.

Tags: Community, Community Education, Featured Content, MDA Care Centers, MDA Resource Center, Mental Health, Parenting, Resources


Blog Post | Independence, Personal Stories

Special Olympic Silver-Medalist Shines Bright in Her Community

Summer Nagele with one of her many Special Olympics medals. Summer Nagele is intent on sharing her gifts and talents with the world. The 19-year-old activist, advocate, and athlete has…

Tags: Community, Fundraising, Staying Active, Young Adults


Blog Post | Finding a Diagnosis, Health

Coping With a Difficult Diagnosis: Your Emotions Are Normal

You’re not alone when coping with a diagnosis of muscular dystrophy or neuromuscular disease. Here are tips for handling your feelings and finding resources to live well.

Tags: Community, Community Education, Featured Content, MDA Care Centers, MDA Peer Connections, MDA Resource Center, Mental Health, Resources


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: The Sailing of a Lifetime

Living in Pennsylvania with her son, Victoria is an active volunteer with her local newspaper, parent-teacher organization, and LGMD NewsΒ magazine as an Assistant Editor. Her social media accounts are a…

Tags: Ambassador Guest Blog, Ambassadors


Blog Post | Health, Independence, Lifestyle, Personal Stories

Letters From Leah: I Love Me!

In today’s fast paced world, we often forget to take care of ourselves.Β  We focus so much on helping others that we often tend to put our own feelings and…

Tags: Ambassadors, Leah, Letters From Leah, Mental Health