Advocacy

Through advocacy, we make the MDA community’s voice heard and promote the interests of kids and adults living with neuromuscular diseases.

Blog Post

Reporting Back from the MDA Public Policy and Advocacy Conference — and Keeping Up the Momentum

By Chris Anselmo | October 24, 2019
Blog Post

US House Passes Newborn Screening Reauthorization

By Brittany Hernandez | July 25, 2019
Blog Post

Congress Moves Forward on Newborn Screening

By Brittany Hernandez | July 16, 2019
Featured Article

The Case for Newborn Screening

By Chris Anselmo | July 15, 2019
Featured Article

The Ups and Downs of Accessible Air Travel

By MDA Staff | July 15, 2019
Blog Post

10 Facts About FSHD — and a Reason to Smile

By Tana Zwart | June 20, 2019
Blog Post

Congress is Considering a Law to Strengthen Newborn Screening: Help MDA Promote its Passage

By Brittany Hernandez | June 4, 2019
Blog Post

Support ALS Patients: Tell Congress to Pass the ALS Disability Insurance Act Today

By Brittany Hernandez | May 22, 2019
Blog Post

Wisconsin Sen. Tammy Baldwin Introduces Air Carrier Access Amendments Act

By Brittany Hernandez | March 12, 2019
Blog Post

Arkansas to Screen Babies for SMA

By MDA Staff | February 7, 2019