News

Read the latest news about issues affecting the neuromuscular disease community.

MDA logo
Blog Post

In a Letter to the Duchenne Community, Santhera Announces Positive Results of Phase 2 Vamorolone Study, EMA’s Review of Puldysa to Treat Symptoms of DMD

By MDA Staff | September 26, 2019
Blog Post

MDA Awards 25 Grants Totaling More Than $6.6 Million for Neuromuscular Disease Research

By Jeanene Swanson | September 5, 2019
baby girl
Blog Post

Biogen Announces Positive Long-Term Results from Phase 2 Study of Spinraza to Treat SMA in Pre-Symptomatic Infants

By Jeanene Swanson | August 21, 2019
Blog Post

The ALS Association, ALS Finding A Cure, and MDA Co-Fund Clinical Trial Grant to Study Restoring Immune System Function to Treat ALS

By Jeanene Swanson | August 9, 2019
Blog Post

Scholar Rock Announces Positive Results from Phase 1 Study of SRK-015 to Treat SMA

By Jeanene Swanson | August 7, 2019
Blog Post

US House Passes Newborn Screening Reauthorization

By Brittany Hernandez | July 25, 2019
Blog Post

MDA Awards Venture Philanthropy Funding to Rachelle Crosbie to Develop a Novel Membrane-Stabilizing Drug for DMD

By Jeanene Swanson | July 18, 2019
Blog Post

Congress Moves Forward on Newborn Screening

By Brittany Hernandez | July 16, 2019
Blog Post

Bennett Foundation Donates $500,000 to Orange, Calif., MDA Summer Camp

By MDA Staff | July 12, 2019
Blog Post

2109 Clinical & Scientific Conference Highlight: Healthcare Technology Moves Out of the Clinic, Into the Pocket

By Lindsey Baker | July 11, 2019