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A look at equity in treatment and access to care for Blacks and other people of color in the neuromuscular disease community.

Oculopharyngeal muscular dystrophy (OPMD) is a rare, slowly progressive muscle disease that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. In some cases, OPMD also causes…

It’s a new year with a new Congress. But what hasn’t changed is MDA’s commitment to improving the lives of people living with neuromuscular diseases. We accomplished a lot last…

Bethlem myopathy, also called Bethlem muscular dystrophy, is a rare disease affecting skeletal muscles and connective tissue. Considered a type of congenital muscular dystrophy, it was initially recognized in the…

As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation, and social gatherings, the holidays can…

Researchers at Virginia Commonwealth University are seeking boys living with Duchenne muscular dystrophy (DMD), as well their biological mothers who may or may not carry DMD-causing genetic variants, to participate in a…

These 10 tips help family caregivers manage stress and avoid burnout.

A man with Duchenne muscular dystrophy (DMD) won his right to live independently. Young adults with disabilities should know about this legal case.

Limb-girdle muscular dystrophy (LGMD) is a diverse group of inherited disorders that cause progressive weakness in the hip and shoulder muscles. Weakening and thinning of these muscles in LGMD can lead…

The start of a new school year can be stressful for the whole family, especially when juggling healthcare appointments, IEP plan meetings, school supply shopping, and assembling a back-to-school wardrobe.…