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Brayden is 17 years old and has been playing wheelchair basketball since he was 8. He is also a wheelchair track and field athlete. Brayden lives with Charcot-Marie-Tooth (CMT) Type…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Anybody who has made a monetary donation to support MDA’s mission knows well that their dollars go a long way to change the lives of those living with neuromuscular disease.…

Owen Kent is the co-founder and Chief Marketing Officer of Assistive Technology Development (ATDev), a startup creating innovative mobility devices that empower people to live independently and confidently. As a…

Megan Jennings, known professionally as Sybil Thorn, is an artist and freelance creator. Born with spinal muscular atrophy, she received her bachelor’s degree in Theater and English with an emphasis…

Facioscapulohumeral muscular dystrophy (FSHD) is a genetic disorder that may affect all muscles across the lifespan of an individual. While FSHD has historically been detected in muscles in the face…

Fashion icon Izzy Camilleri bridges high fashion and accessibility, designing stylish adaptive clothing for people who use wheelchairs.

Jon Bruns is 56 years old.  He is originally from South Dakota and now lives in Ham Lake, Minnesota.  Jon was diagnosed with Beckers muscular dystrophy (BMD) in his early…

Philadelphia Flyers PowerPlay Orange Team takes the court in Game 3 of the tournament. Photo credit: Bradley Digital. On the weekend of August 1, five Powerhockey teams from across North…

In this Quest Podcast episode, we chat with Dr. Stephan Züchner, Dr. Conrad “Chris” Weihl, and the Interim Chief Research Officer of the Muscular Dystrophy Association, Dr. Angela Lek.  Leaders…