Archives




Featured Article | Get Involved

Volunteers Make a Big Impact on the MDA Community

MDA has always received vital support from volunteers, with almost 2,000 people volunteering at MDA events in the past year.

Tags: A Look Inside, Community, Featured Content, Summer Camp, Volunteers


Featured Article | News, Science + Research

Stem Cell Innovations Drive Advances in Muscle Regeneration

MDA plays a key role in a new frontier of medicine looking into how to regenerate muscles lost to neuromuscular disease.

Tags: Clinical Trials, Featured Content, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances


Featured Article | Science + Research

Innovations in GNE Myopathy Research

Leading researchers on GNE myopathy discuss what is known about this neuromuscular disease and the search for effective therapies.

Tags: Clinical Trials, Drug Development, Featured Content, Genetic Testing, Research, Spotlight


Featured Article | Personal Stories

Mashauna Black Keeps Following Her Passion

Mashauna Black, who lives with limb-girdle muscular dystrophy (LGMD), found a new path to pursue her dream of working in healthcare.

Tags: Employment, Featured Content, Quest for Success


Featured Article | Advocacy, Inclusion, Independence

Ready to Work: How People with Disabilities Balance Benefits and Employment

How disability benefits are affected by employment and how to work with eligibility and income restrictions.

Tags: Employment, Featured Content, Insurance, Young Adults


Featured Article | Finding a Diagnosis, Inclusion, Personal Stories

4 Key Ways to Support Siblings of Kids with Neuromuscular Diseases

When a child is diagnosed with a neuromuscular disease, it impacts siblings, too. Here’s how to help them cope and build resilience.

Tags: Caregiving, Featured Content, Parenting, Relationships, Web Exclusive, Young Adults


Featured Article | Independence, Lifestyle

Tap Into Accessibility with These Underused Smartphone Features

These often-overlooked accessibility features and apps can enhance your smartphone experience.

Tags: Featured Content, Technology, Thrive 365


Blog Post | News, Science + Research, Tools& Resources

Simply Stated: Updates in Pompe Disease and Other Glycogen Storage Diseases

Glycogen storage diseases (GSDs) are a group of rare inherited conditions that occur when the body is not able to use or store glycogen properly. People with GSDs may experience…

Tags: Simply Stated


Blog Post | Health, Independence, Lifestyle, News, Science + Research, Tools& Resources

MDA’s Development Grants Support Promising Researchers Entering the Neuromuscular Field

MDA’s Development Grants to support early-career scientists are vital to driving innovation in neuromuscular disease research.

Tags: Featured Content, Grants, Research


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

First Semester in a New York Minute

Jonathan Lengel is an actor, singer, and performer best known for his role as Archie in Netflix’s Broadway Adaptation of 13: the Musical. Jonathan lives with a rare form of…

Tags: Ambassadors, College, College Experience, Community, MDA College Scholarships, Year of Independence, Young Adults