Archives
Volunteers Make a Big Impact on the MDA Community
MDA has always received vital support from volunteers, with almost 2,000 people volunteering at MDA events in the past year.
Stem Cell Innovations Drive Advances in Muscle Regeneration
MDA plays a key role in a new frontier of medicine looking into how to regenerate muscles lost to neuromuscular disease.
Tags: Clinical Trials, Featured Content, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances
Innovations in GNE Myopathy Research
Leading researchers on GNE myopathy discuss what is known about this neuromuscular disease and the search for effective therapies.
Mashauna Black Keeps Following Her Passion
Mashauna Black, who lives with limb-girdle muscular dystrophy (LGMD), found a new path to pursue her dream of working in healthcare.
Ready to Work: How People with Disabilities Balance Benefits and Employment
How disability benefits are affected by employment and how to work with eligibility and income restrictions.
Tags: Employment, Featured Content, Insurance, Young Adults
4 Key Ways to Support Siblings of Kids with Neuromuscular Diseases
When a child is diagnosed with a neuromuscular disease, it impacts siblings, too. Here’s how to help them cope and build resilience.
Tap Into Accessibility with These Underused Smartphone Features
These often-overlooked accessibility features and apps can enhance your smartphone experience.
Tags: Featured Content, Technology, Thrive 365
Simply Stated: Updates in Pompe Disease and Other Glycogen Storage Diseases
Glycogen storage diseases (GSDs) are a group of rare inherited conditions that occur when the body is not able to use or store glycogen properly. People with GSDs may experience…
Tags: Simply Stated
MDA’s Development Grants Support Promising Researchers Entering the Neuromuscular Field
MDA’s Development Grants to support early-career scientists are vital to driving innovation in neuromuscular disease research.
Tags: Featured Content, Grants, Research
First Semester in a New York Minute
Jonathan Lengel is an actor, singer, and performer best known for his role as Archie in Netflix’s Broadway Adaptation of 13: the Musical. Jonathan lives with a rare form of…
Tags: Ambassadors, College, College Experience, Community, MDA College Scholarships, Year of Independence, Young Adults