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Charcot-Marie-Tooth disease (CMT) usually affects the feet, impacting mobility. Experts weigh in on when to consider foot surgery and bracing.

Doug Clough is 61 years old (OMG) and lives in Gilbert, AZ. Doug has Amyotrophic Lateral Sclerosis (ALS, Lou Gehrig’s disease) and a spinal cord injury (SCI). He uses a…

In recognition of International Day of Women and Girls in Science, the Muscular Dystrophy Association (MDA) is honored and excited to highlight the career and accomplishments of Dr. Dwi U.…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

In exciting news for the neuromuscular disease community, MDA’s Advocacy team has just announced the next recipients of MDA Advocacy Collaboration Grants! Applications opened in August 2023 with a focus…

People with neuromuscular diseases and doctors discuss how complementary and alternative medicine helps symptoms.

Researchers at George Washington University are seeking individuals living with muscle-specific tyrosine kinase-associated myasthenia gravis (MuSK MG) to participate in a genome-wide association study. The objective of this study is to collect…

Crème Brulee Prepared by Ira Walker Crème Brulee. It’s a creamy French dessert custard that is presented commonly in a small round ramekin. That’s the crème…but what about the brulee?  To…

Diagnosed with myotonic muscular dystrophy in adulthood, Thad is passionate about nature and exploring all that North Carolina has to offer. His newest project is cultivating mushrooms. Sixteen years ago, I…

As we embark on a new year, MDA’s commitment to changing public policy and truly empowering the neuromuscular community remains the same. MDA advocates accomplished a lot last year,  and…