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Leading researchers on GNE myopathy discuss what is known about this neuromuscular disease and the search for effective therapies.

Mashauna Black, who lives with limb-girdle muscular dystrophy (LGMD), found a new path to pursue her dream of working in healthcare.

How disability benefits are affected by employment and how to work with eligibility and income restrictions.

When a child is diagnosed with a neuromuscular disease, it impacts siblings, too. Here’s how to help them cope and build resilience.

These often-overlooked accessibility features and apps can enhance your smartphone experience.

Glycogen storage diseases (GSDs) are a group of rare inherited conditions that occur when the body is not able to use or store glycogen properly. People with GSDs may experience…

MDA’s Development Grants to support early-career scientists are vital to driving innovation in neuromuscular disease research.

Jonathan Lengel is an actor, singer, and performer best known for his role as Archie in Netflix’s Broadway Adaptation of 13: the Musical. Jonathan lives with a rare form of…

With so many types of lifts available, how do choose the right one? Here are tips and considerations to find a transfer lift or lift system that works for you.

As we celebrate MDA’s 75th anniversary, you may be asking, how did this all begin? It’s no surprise that MDA started as a grassroots organization. From the earliest days, our…