Archives

Researchers at Priovant Therapeutics are seeking adults with dermatomyositis to participate in a phase 3 clinical trial (VALOR) to evaluate the safety and effectiveness of the investigational therapy brepocitinib to treat…

MDA is excited to collaborate and join the inaugural Becker Education and Engagement Day (BEED) this December 2nd. The free, in-person event aims to bring individuals and families together to…

In this Quest Podcast episode, we chat with the Director of Marketing and Communications at Idealist.org, President for New York Women in Communications (NYWICI) and host of the NYWICI WomenHeard Changemakers podcast.…

Dear World, Hello, welcome back to “Letters from Leah”. As I reflect, I have a lot to be thankful for due to being blessed throughout my life. I am writing…

As the holiday season approaches, we are reminded of the spirit of giving and the importance of gratitude. It is a time when we come together to support organizations that…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Jennifer Cruz and her mother Jennifer Cruz is 36 years old and lives in Broken Arrow, OK. Jennifer has Ullrich congenital muscular dystrophy and uses a wheelchair and noninvasive ventilation.…

Marshall Eckert in the Air Force Marshall Eckert currently resides in Virginia, just outside the capital, and navigates life with Limb-Girdle Muscular Dystrophy Type 2B. He is a proud alumnus…

MDA Summer Camp creates opportunities for youth living with neuromuscular disease to gain confidence, increase communication skills, try new things, tackle challenges, and dream big. It is a truly unique…

The recent FDA approval of Catalyst’s AGAMREE ® (vamorolone) is a beacon of hope for people living with Duchenne muscular dystrophy (DMD), a rare but serious degenerative muscle disease.   According…