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When doctors don’t know what you have, ask your healthcare providers these important questions to help them get to a diagnosis.

Genetic testing and family planning can help parents understand risks of inherited diseases, prepare for them, and take action if they choose to.

When considering genetic testing, you should know how protections against genetic discrimination affect health, life, disability, and long-term care insurance.

Updates on COVID-19’s impact on neuromuscular diseases and how to protect yourself against the virus.

Neurologist Mark Terrelonge, MD, answers common questions about research and treatment for metabolic myopathies.

Abhiram Srivatsa, DO, shares how Emery-Dreifuss muscular dystrophy impacted his journey to becoming a doctor.

Five challenges facing the neuromuscular disease community during the holiday season and tips to overcome them.

Google, QVC, and Slick Chicks are three inclusive companies making and offering accessible and adaptive products.

What you need to know to make a smooth transition from pediatric to adult healthcare for muscular dystrophy and other neuromuscular diseases.

For over 70 years, the Muscular Dystrophy Association has led the way in accelerating research for ALS, also known as Lou Gehrig’s disease. Over that time, MDA has dedicated over…