Archives

Researchers at EMD Serono Research & Development Institute, Inc. are working to better understand generalized myasthenia gravis (gMG) and study effectiveness of a potentially new treatment. The study People who have…

Kevin Crowley is a 48-year-old father of two, husband to the most beautiful woman in the world, dad of a yellow Labrador Retriever, and a coach of the world’s greatest…

I’m John Krepps and I am living with Charcot Marie Tooth disease, also known as CMT. I live in Pittsburgh Pennsylvania. (so yes, I’m a Steelers fan.) I’m married to…

Researchers at Amylyx Pharmaceuticals, Inc. are seeking adults with amyotrophic lateral sclerosis (ALS) to participate in a phase 1 clinical trial (LUMINA) to evaluate the safety and efficacy of the investigational…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

As exoskeleton technology improves, more devices are available for use in physical therapy and as mobility aids for people with neuromuscular diseases.

Expanded access (compassionate use) helps patients access promising treatments when no other options exist. Learn how this process works.

In August, Quest had the privilege of spotlighting published authors living with neuromuscular disease and sharing their books in celebration of National Read A Book Day. With so many talented…

Neuropathy ataxia and retinitis pigmentosa (NARP) syndrome is a rare, maternally-inherited condition caused by mutations in mitochondrial DNA, affecting the energy-producing structures within cells. The condition typically begins in childhood…

It’s that time of year when we come together to connect, share, learn—while accelerating progress in neuromuscular (NMD) healthcare and scientific progress. This conference is one of the most meaningful…