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Researchers at the University of Florida are seeking adult males living with Becker muscular dystrophy (BMD) to participate in a three-year natural history study. The objective of this observational study is to…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Nevin Steiner and his children, Abbott and Laurel. Being a father is one of the most rewarding things in life. I have two children, Abbott (6) and Laurel (3). Add having…

As MDA welcomes back a busy schedule of in-person events this year, there are a myriad of ways that individuals can come together and reap the benefits of time well…

We are back in person (and better than ever!) MDA National Ambassador Amy Shinneman, MDA National Ambassador Leah Z., and Advocate Reagan Imhoff at Hill Day. It’s been over three…

Nevin Steiner with his wife and two children. ESPN Digital Producer Nevin Steiner has found his life’s mission in sharing the message that “it’s not what you can’t do in…

I feel like our mental health is something we don’t discuss enough. I want to share how Muscular Dystrophy has affected my mental health, because honestly speaking, there have been…

Choose the right home security system to make people with neuromuscular diseases and other disabilities safer in their homes.

Brothers Travis and Dane Boersma stand in front of a coffee pushcart in downtown Grants Pass, OR. Anyone who has had the opportunity to visit one of the over 700…

When considering telling friends and family about a diagnosis, here are best practices and how to handle questions.