Archives

Two uncles find creative ways to fundraise for MDA and support their nephew with Becker muscular dystrophy (BMD).

Actor, director, and composer Jess Westman explains why he made a musical about living with muscular dystrophy.

Adults with disabilities who want to live independently are finding that community services and self-advocacy can help them get their own place.

Leticia Tatum did not let her neuromuscular disease or disability hold her back from pursuing a successful career.

For a more accessible home on a budget, focus on small home modifications that make a big impact.

Advancements in gene therapy help streamline a wave of drug approvals for the neuromuscular disease community.

MDA-supported research at different stages of drug development is directly linked to life-changing therapies for neuromuscular diseases.

The 2023 MDA Clinical & Scientific Conference helped the scientific community and individuals living with neuromuscular diseases and their families stay informed on research and care.

It’s normal to feel grief after being diagnosed with a neuromuscular disease or losing physical function to a progressive disease. Here’s how to handle it.

Mark Tarnopolsky, MD, PhD, FRCP(C), professor of Pediatrics at McMaster Children’s Hospital in Hamilton, Ontario, remembers clearly one of the first patients he saw in practice almost 25 years ago…