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Chloe Crabb lives in Colorado with spinal muscular atrophy (SMA). She is a high school freshman and absolutely loves all things related to education and advocacy. Chloe lives with her…

MDA National Ambassador Lily Sander at the 2026 MDA Clinical & Scientific Conference The annual MDA Clinical & Scientific Conference is the largest global gathering of leading experts dedicated to…

Cassidy Nilles is a 36-year-old living with LGMD 2J who lives in the suburbs of Chicago. Diagnosed at age 20, she started using a wheelchair after the birth of her…

Categorizing Walker-Warburg syndrome, muscle-eye-brain disease, and Fukuyama congenital muscular dystrophy Congenital muscular dystrophies (CMD) are a group of inherited muscle disorders that become apparent within the first two years after…

Researchers at Biogen are conducting the phase 3 SOLAR study to learn more about spinal muscular atrophy (SMA) and to evaluate salanersen, an investigational therapy being studied for the treatment of…

Callie Hall lives in Orlando Florida and lives with a unique neuromuscular disability. She is passionate about disability rights, bluegrass mandolin, and being outdoors. RIIIIIIIING the school bell signals the…

Community members who use breathing devices say their ventilators support their freedom, mobility, and energy and improve respiratory health.

Zach Fine Zach Fine and his family know firsthand how imperative it is to have an advocate to educate and fight for your needs while receiving medical care. Zach, a…

With so many talented writers in our neuromuscular disease community, Quest Media is excited to share its third Spotlight on Community Authors. This series features a compilation of gifted and…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…