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Facioscapulohumeral muscular dystrophy (FSHD) is a genetic disorder that may affect all muscles across the lifespan of an individual. While FSHD has historically been detected in muscles in the face…

Fashion icon Izzy Camilleri bridges high fashion and accessibility, designing stylish adaptive clothing for people who use wheelchairs.

Jon Bruns is 56 years old.  He is originally from South Dakota and now lives in Ham Lake, Minnesota.  Jon was diagnosed with Beckers muscular dystrophy (BMD) in his early…

Philadelphia Flyers PowerPlay Orange Team takes the court in Game 3 of the tournament. Photo credit: Bradley Digital. On the weekend of August 1, five Powerhockey teams from across North…

In this Quest Podcast episode, we chat with Dr. Stephan Züchner, Dr. Conrad “Chris” Weihl, and the Interim Chief Research Officer of the Muscular Dystrophy Association, Dr. Angela Lek.  Leaders…

When I think of Labor Day Weekend every September, it truly invokes so many emotions and memories for me! As a 90’s kid from the mid-west, the holiday meant it…

Chase Rankin was diagnosed with Friedreich’s ataxia in the 7th grade. He is now a graduate from the University of North Carolina at Charlotte, with dreams of becoming an author.…

Living in Pennsylvania with her son, Victoria is an active volunteer with the Speak Foundation and LGMD News magazine as an Assistant Editor. She educates occupational and physical therapists, along…

Saida Mahoney is a college student from Oakland, CA, where she is majoring in performing arts. She is a dedicated advocate and activist for people living with disabilities. Saida enjoys…

Chase the Entertainer “My name is Chase the Entertainer. I’m a mentally ill, physically disabled, Native American, professional magician, and I only look like one of those things.” This is…