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Blog Post | Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Grateful for the One by My Side on Valentine’s Day (and Every Day)

Jeff Thomas resides in beautiful Boise, Idaho with his partner in crime, Christine, and their precious fur-babies, Tito, Flora, and Fred.  Their love and support motivate him in the fight…

Tags: Ambassador Guest Blog, Ambassadors, Community, Dating and Marriage, Relationships


Blog Post | Advocacy, News, Tools& Resources

Recent Updates with Section 504

In January, nine states led by Texas revised their challenge to Section 504 of the Rehabilitation Act and the integration mandate required by both Section 504 and the Americans with Disabilities Act…

Tags: Advocacy Updates


Blog Post | Personal Stories, Research, Science + Research

International Day of Women and Girls in Science: MDA Spotlight on Elizabeth Madole

International Women and Girls in Science Day, February 11, endeavors to acknowledge and celebrate the invaluable role that women and girls play in accelerating change and discovery in the professional…

Tags: Ambassadors, Community, Healthcare, MDA Care Centers, Research, Summer Camp, Young Adults


Blog Post | Independence, Lifestyle, Tools& Resources

In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Caregiving, College, Community, Education, Resources


Blog Post | Advocacy, News, Tools& Resources

Our 2026 Advocacy Agenda

After a year of twists and turns in 2025, MDA and its advocates are even more motivated to raise their voices and create change for the neuromuscular community. Check out…

Tags: Advocacy Updates, Community, MDA Advocacy


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Pursuing My Dreams While Living with a Rare Disease

Gabrielle Runyon is a graduate student in the Master’s Counseling Program at the illustrious Tennessee State University. She is from Louisville, Kentucky. Gabrielle was diagnosed with spinal muscular atrophy (SMA)…

Tags: Ambassador Guest Blog, Ambassadors, College, College Experience, Community, Education, Mental Health, Relationships, Young Adults


Blog Post | Health, Science + Research, Tools& Resources

Simply Stated: Understanding Myotonia Congenita

Myotonia congenita (MC) is a rare, inherited neuromuscular condition characterized by muscle stiffness (myotonia) present during infancy or childhood. Unlike some other neuromuscular disorders, MC does not cause progressive muscle…

Tags: Simply Stated


Blog Post | Independence, Lifestyle, Personal Stories

Making the Impossible Possible: One Man’s Journey on the Camino de Santiago de Compostela

Kurt Aguilar and his wife, Cathryn Domrose, in Vigo, Spain, before starting on the Camino de Santiago de Compostela. (Photo by Rebecca Taggart) Every year, hundreds of thousands of people…

Tags: Community, Staying Active, Travel


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, News, Personal Stories, Tools& Resources

What’s Ahead for Your 2026 National Ambassador

For over 70 years, MDA’s National Ambassadors have been an intrinsic part of championing for our mission to empower people living with neuromuscular disease and increase care, research, and advocacy…

Tags: Ambassadors, College, Community, Lily, MDA Ambassador Program, MDA National Ambassadors, Relationships, Young Adults


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

Quest Podcast: Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles

In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life, independence, and…

Tags: Accessible Air Travel, Caregiving, Community, Life Hacks, Mental Health, Relationships, Travel, Young Adults