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Glycogen storage diseases (GSDs) are a group of rare inherited conditions that occur when the body is not able to use or store glycogen properly. People with GSDs may experience…

MDA’s Development Grants to support early-career scientists are vital to driving innovation in neuromuscular disease research.

Jonathan Lengel is an actor, singer, and performer best known for his role as Archie in Netflix’s Broadway Adaptation of 13: the Musical. Jonathan lives with a rare form of…

With so many types of lifts available, how do choose the right one? Here are tips and considerations to find a transfer lift or lift system that works for you.

As we celebrate MDA’s 75th anniversary, you may be asking, how did this all begin? It’s no surprise that MDA started as a grassroots organization. From the earliest days, our…

Researchers at Janssen Research & Development, LLC are seeking pediatric patients from 8 to less than 18 years of age who have generalized myasthenia gravis (gMG) with symptoms despite receiving…

Hello everyone! I’m so excited to launch my quarterly blog series as your 2025 National Ambassador! This first “Life with Lily” post is deeply personal, a reflection on my journey…

Advocacy for the neuromuscular disease community is just one of the key ways MDA works to support the neuromuscular disease community. To expand our impact and undertake projects of importance…

In this episode of Quest Podcast, we chat with three of our MDA Ambassadors. Nora is a passionate animal advocate and lives with Selenon (SEPN1)-related myopathy (RM). Justin is a…

K.L. Cleeton is an entrepreneur, poker professional, and social media influencer committed to empowering individuals to realize their potential. He focuses on startup development and motivates others to overcome their…