Archives
In Case You Missed It…
Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Exoskeletons Improve Movement for Those with Neuromuscular Diseases
As exoskeleton technology improves, more devices are available for use in physical therapy and as mobility aids for people with neuromuscular diseases.
How Expanded Access and Compassionate Use Broaden Access to Investigational Therapies
Expanded access (compassionate use) helps patients access promising treatments when no other options exist. Learn how this process works.
Books to Add to Your Holiday Shopping List This Year: Spotlight on Community Authors
In August, Quest had the privilege of spotlighting published authors living with neuromuscular disease and sharing their books in celebration of National Read A Book Day. With so many talented…
Simply Stated: Updates in Neuropathy Ataxia and Retinitis Pigmentosa (NARP) Syndrome
Neuropathy ataxia and retinitis pigmentosa (NARP) syndrome is a rare, maternally-inherited condition caused by mutations in mitochondrial DNA, affecting the energy-producing structures within cells. The condition typically begins in childhood…
Tags: Simply Stated
Getting Ready for the 2026 MDA Clinical & Scientific Conference
It’s that time of year when we come together to connect, share, learn—while accelerating progress in neuromuscular (NMD) healthcare and scientific progress. This conference is one of the most meaningful…
What to Know About Changes to Food Assistance through SNAP
Funding for the Supplemental Nutrition Assistance Program, which provides food assistance to more than 42 million children and adults across the country – including 4 million people with disabilities –…
Tags: Caregiving, Community, Mental Health, Nutrition
Quest Podcast: Voices of Inclusion: Celebrating NDEAM with Disability:IN
October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast, we dive into accessibility and inclusion in the workforce with Russell Shaffer, Executive Vice President…
Tags: Community, Employment, Innovation, Mental Health, NDEAM, Research, Young Adults
Cooking with a Disability? Yes, Chef!
A chef with a disability adapts her cooking for her abilities, using mobility equipment, accessible tools, and shortcuts.
MDA Ambassador Guest Blog: Why I am Speaking Up for Our Community at MDA Hill Day
Faith is 14 years old and lives in Texas. She is a freshman in high school. Faith served as the MDA National Ambassador in 2018 and 2019. She is currently…