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Blog Post | Advocacy, Independence, Lifestyle, Tools& Resources

In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Advocacy Updates. Community, Ambassadors, Employment, In Case You Missed It


Blog Post | Health, Independence

Exoskeletons Improve Movement for Those with Neuromuscular Diseases

As exoskeleton technology improves, more devices are available for use in physical therapy and as mobility aids for people with neuromuscular diseases.

Tags: Equipment and Assistive Devices, Featured Content, Innovation, Technology


Blog Post | Advocacy, Health, Science + Research

How Expanded Access and Compassionate Use Broaden Access to Investigational Therapies

Expanded access (compassionate use) helps patients access promising treatments when no other options exist. Learn how this process works.

Tags: Clinical Trials, Drug Development, Featured Content, Healthcare, Research


Blog Post | Inclusion, Independence, Lifestyle, Personal Stories

Books to Add to Your Holiday Shopping List This Year: Spotlight on Community Authors

In August, Quest had the privilege of spotlighting published authors living with neuromuscular disease and sharing their books in celebration of National Read A Book Day. With so many talented…

Tags: Community, Resources


Blog Post | Finding a Diagnosis, Health, Inclusion, Science + Research, Tools& Resources

Simply Stated: Updates in Neuropathy Ataxia and Retinitis Pigmentosa (NARP) Syndrome

Neuropathy ataxia and retinitis pigmentosa (NARP) syndrome is a rare, maternally-inherited condition caused by mutations in mitochondrial DNA, affecting the energy-producing structures within cells. The condition typically begins in childhood…

Tags: Simply Stated


Blog Post | Advocacy, Get Involved, Health, News, Science + Research, Tools& Resources

Getting Ready for the 2026 MDA Clinical & Scientific Conference

It’s that time of year when we come together to connect, share, learn—while accelerating progress in neuromuscular (NMD) healthcare and scientific progress. This conference is one of the most meaningful…

Tags: MDA Clinical and Scientific Conference


Blog Post | Get Involved, Health, Independence, Lifestyle, News, Tools& Resources

What to Know About Changes to Food Assistance through SNAP

Funding for the Supplemental Nutrition Assistance Program, which provides food assistance to more than 42 million children and adults across the country – including 4 million people with disabilities –…

Tags: Caregiving, Community, Mental Health, Nutrition


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, News, Research, Tools& Resources

Quest Podcast: Voices of Inclusion: Celebrating NDEAM with Disability:IN

October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast, we dive into accessibility and inclusion in the workforce with Russell Shaffer, Executive Vice President…

Tags: Community, Employment, Innovation, Mental Health, NDEAM, Research, Young Adults


Blog Post | Inclusion, Independence, Lifestyle, Personal Stories

Cooking with a Disability? Yes, Chef!

A chef with a disability adapts her cooking for her abilities, using mobility equipment, accessible tools, and shortcuts.

Tags: College, Employment, Equipment and Assistive Devices, Featured Content, Young Adults


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Why I am Speaking Up for Our Community at MDA Hill Day

Faith is 14 years old and lives in Texas. She is a freshman in high school. Faith served as the MDA National Ambassador in 2018 and 2019. She is currently…

Tags: Ambassador Guest Blog, Ambassadors, Community, Young Adults