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Multidisciplinary care for amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases leads to better outcomes.

Researchers at Natera are seeking female carriers of spinal muscular atrophy (SMA) and their affected or unaffected biological children for an observational study (DYADS study). This study will collect blood…

Jessica and Mark Lennox live in Jupiter, Florida with their two sons, four-year-old William, and two-year-old old Paul. Mark is a US Army veteran and works in renewable energy. Jess,…

In this Quest Podcast episode, we chat with Joel Cartner, MDA’s Director of Access Policy, and Jori Houck, MDA’s Manager of Advocacy Engagement. They join us to share the most…

Travel with a disability is unpredictable. Here are tips to plan and prepare for a smoother trip with a wheelchair.

Dwayne Wilson is 57 years old. He is originally from Southern California and lived in Spokane, WA. for 20 years until moving back home to Irvine, Ca, in 2017. Dwayne…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Craig Helget and his brother, Terry Helget, at MDA Summer Camp in 1985. The Helget family has been volunteering at MDA Summer Camp for more than four decades. It all…

In this Quest Podcast episode, we chat with MDA Ambassador Jess Westman about embracing individuality and finding joy in our lives as paths and priorities change. The activist, actor, composer,…

Researchers at AskBio are seeking adults with genetically confirmed limb-girdle muscular dystrophy (LGMD) type 2I/R9 to participate in a phase 1/2 clinical trial (LION-CS101) to evaluate the safety and tolerability of…