Archives




Blog Post | Health

Preparing for Your MDA Care Center Visit

Preparing for your MDA Care Center visit can ensure that all of your questions regarding your or your loved one’s care plan are answered.

Tags: Healthcare, MDA Care Centers


Blog Post | Science + Research

Simply Stated: What is Friedreich’s Ataxia (FRDA)?

Friedreich’s ataxia (FRDA) is an inherited neuromuscular disease that primarily impacts the nervous system and heart and affects about one in 50,000 people worldwide.

Tags: Healthcare, Innovation, Research, Simply Stated


Blog Post | Independence, Lifestyle, Personal Stories

Quest for Success: Brian Chao

Brian Chao, CFO of Starkloff Disability Institute’s, discusses the importance of empowering and preparing individuals with disabilities in the workforce.

Tags: College, Community, Education, Employment, Quest for Success, Resources, Year of Independence


Blog Post | Get Involved, Lifestyle, Personal Stories

MDA Chicago Muscle Walk MC Billy Z is Changing the World One Slice at a Time

Eight years ago, if you were looking for Billy Zureikat you would find him on the basketball court. The 38-year-old, former ESPN producer and current logistics manager’s passion was on…

Tags: Community, Fundraising, Muscle Walk


Blog Post | Science + Research

Research Study Alert: Track-ALS Study of Home-Based Digital Monitoring to Assess ALS Progression

Researchers seek adults living with ALS for research study assessing if measurements collected at home can help track disease progression.

Tags: Research, Research Study Alert


Blog Post | Science + Research

Clinical Trial Alert: Phase 3 Study of investigational drug in Adults Living with ALS

Researchers seek adults living with ALS to participate in clinical trial to evaluate the safety and effectiveness of investigational drug.

Tags: Clinical Trial Alert, Drug Development, Research


Featured Article | Advocacy, Independence, Lifestyle, Personal Stories

Claiming Success

Insights on achieving your goals The Year of Independence is the perfect time to celebrate individuals in our MDA community who are shattering expectations and forging forward to achieve their…

Tags: Employment, Relationships, Summer Camp, Year of Independence


Featured Article | Inclusion, Independence, Personal Stories

MDA Summer Camp Primes Kids for Independence

Children and youth with neuromuscular diseases build confidence and make friends at camp When Matthew and Jacob Rovenstine first went to MDA Summer Camp in Arizona in 2018, the brothers…

Tags: Featured Content, Staying Active, Summer Camp, Volunteers


Featured Article | Inclusion, Independence, Personal Stories, Science + Research

Profiles in STEM

Meet four individuals who prove that people with disabilities can thrive in challenging fields Although students with disabilities indicate interest and intent to pursue science, technology, engineering, and math (STEM)…

Tags: Ambassadors, Education, Employment, Featured Content, Staying Active


Featured Article | Independence, Personal Stories

Dynamic Duo

Teen’s small business saves man’s best friend Some of the best ideas — and friendships — are born from moments of necessity. When 13-year-old Jackson Saville, who lives with spinal…

Tags: Featured Content, Lasting Impression