Archives
Adaptive Sports Offer Benefits for All Ages
In addition to being fun, participating in adaptive sports has other benefits for those with physical disabilities.
Tags: Community, Leah, Staying Active, Young Adults
Promoting Diversity in Rare Disease Research
Improvements are needed to increase diversity in rare disease clinical trials and research in the United States.
Tags: Clinical Trials, Community, Healthcare, Innovation, Research
Researchers Announce Results from a Phase 3 Study of Corticosteroid Dosing to Treat DMD
Researchers announce positive results from study of corticosteroid dosing regimens for people with Duchenne muscular dystrophy (DMD).
Tags: Research Advances
Research Study Alert: Survey for People with Muscular Dystrophy and Their Caregivers about Quality of Life
Researchers are seeking people living with muscular dystrophy (MD) and their caregivers for a survey about their quality of life.
Tags: Caregiving, Research Study Alert
Clinical Trial Alert: Phase 2 Study of ALXN2050 in Adults Living with gMG
Researchers are seeking adults living with generalized myasthenia gravis (gMG) for clinical trial to evaluate investigational drug ALXN2050.
Clinical Trial Alert: Phase 2 Study of Ravulizumab (Ultomiris) in Adults Living with Dermatomyositis
Researchers are seeking adults living with dermatomyositis to participate in a clinical trial for the investigational drug ravulizumab.
MDA Welcomes National Volunteer Month with Gratitude
MDA celebrates National Volunteer Month by thanking our volunteers who work tirelessly to support MDA’s mission and the families we serve.
Quest for Success: Tana Zwart
Tana Zwart, a freelance media manager, has made an art of adapting to a changing job market while pursuing and achieving her goals.
Simply Stated: What is Myotonic Dystrophy?
Similar to other forms of muscular dystrophy, Myotonic Dystrophy (DM) is characterized by progressive muscle loss and weakness.
Living Through War in Ukraine with a Neuromuscular Disease
The war in Ukraine destroys hospitals and care centers, threatening the lives of those with neuromuscular disease.
Tags: Caregiving, Community, Healthcare, Parenting, Resources