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Blog Post | Independence, Lifestyle, Personal Stories

Adaptive Sports Offer Benefits for All Ages

In addition to being fun, participating in adaptive sports has other benefits for those with physical disabilities.

Tags: Community, Leah, Staying Active, Young Adults


Blog Post | Advocacy, Inclusion, Research

Promoting Diversity in Rare Disease Research

Improvements are needed to increase diversity in rare disease clinical trials and research in the United States.

Tags: Clinical Trials, Community, Healthcare, Innovation, Research


Blog Post | Science + Research

Researchers Announce Results from a Phase 3 Study of Corticosteroid Dosing to Treat DMD

Researchers announce positive results from study of corticosteroid dosing regimens for people with Duchenne muscular dystrophy (DMD).

Tags: Research Advances


Blog Post | Science + Research

Research Study Alert: Survey for People with Muscular Dystrophy and Their Caregivers about Quality of Life

Researchers are seeking people living with muscular dystrophy (MD) and their caregivers for a survey about their quality of life.

Tags: Caregiving, Research Study Alert


Blog Post | Science + Research

Clinical Trial Alert: Phase 2 Study of ALXN2050 in Adults Living with gMG

Researchers are seeking adults living with generalized myasthenia gravis (gMG) for clinical trial to evaluate investigational drug ALXN2050.

Tags: Clinical Trial Alert, Drug Development, Research


Blog Post | Science + Research

Clinical Trial Alert: Phase 2 Study of Ravulizumab (Ultomiris) in Adults Living with Dermatomyositis

Researchers are seeking adults living with dermatomyositis to participate in a clinical trial for the investigational drug ravulizumab.

Tags: Clinical Trial Alert, Drug Development, Research


Blog Post | Get Involved, Personal Stories

MDA Welcomes National Volunteer Month with Gratitude

MDA celebrates National Volunteer Month by thanking our volunteers who work tirelessly to support MDA’s mission and the families we serve.

Tags: Community, Fill the Boot, Fundraising, Muscle Walk, Summer Camp, Team Momentum, Volunteers


Blog Post | Personal Stories

Quest for Success: Tana Zwart

Tana Zwart, a freelance media manager, has made an art of adapting to a changing job market while pursuing and achieving her goals.

Tags: College, Community, Education, Employment, Quest for Success, Year of Independence


Blog Post | Science + Research

Simply Stated: What is Myotonic Dystrophy?

Similar to other forms of muscular dystrophy, Myotonic Dystrophy (DM) is characterized by progressive muscle loss and weakness.

Tags: Clinical Trials, Healthcare, Innovation, Research, Resources, Simply Stated


Blog Post | News

Living Through War in Ukraine with a Neuromuscular Disease

The war in Ukraine destroys hospitals and care centers, threatening the lives of those with neuromuscular disease.

Tags: Caregiving, Community, Healthcare, Parenting, Resources