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Blog Post | Health, Science + Research

Simply Stated: Updates in LAMA2 Muscular Dystrophy

LAMA2-related muscular dystrophy (LAMA2-RD) is a rare neuromuscular condition characterized by proximal (close to the body center), axial (head and trunk), and facial weakness, elevated creatine kinase (CK), central and…

Tags: Clinical Trials, Healthcare, Simply Stated


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 38: Love Made Simple with Alexa and Jacqueline Child of DateAbility

In this Quest Podcast episode, we chat with the founders of DateAbility, a dating application geared towards individuals with disabilities and chronic illnesses. Alexa and Jacqueline Child have devoted their…

Tags: Dating and Marriage, Relationships


Featured Article | Advocacy, Inclusion

Disability Benefits and the Marriage Penalty

Getting married may mean losing vital disability benefits. Here’s what’s being done to erase the marriage penalty.

Tags: Dating and Marriage, Featured Content, Finance, Healthcare, Relationships


Featured Article | Inclusion, Independence

Raising Resilient Kids with Neuromuscular Diseases

People living with neuromuscular diseases share their upbringing and how their parents instilled resilience from a young age.

Tags: Featured Content, Let's Play, MDA Mentorships, MDA Resource Center, Mental Health, Parenting, Summer Camp, Young Adults


Featured Article | Personal Stories

Former MDA Summer Campers Reunite After 14 Years

Former MDA Summer Campers get together after 14 years to reunite and continue their lasting connections.

Tags: Featured Content, Lasting Impression, Summer Camp


Featured Article | Inclusion, Lifestyle

ReelAbilities Co-Founder Talks Representation on the Big Screen

ReelAbilities Film Festival co-founder Isaac Zablocki talks about disability representation in the entertainment industry.

Tags: A Look Inside, Community, Featured Content


Featured Article | Get Involved

How MDA Can Support You

Read about the many ways MDA engages with and supports families in the neuromuscular disease community.

Tags: Featured Content, MDA Care Centers, MDA Connect, MDA Resource Center, Muscle Walk, Summer Camp, Thrive 365, Volunteers


Featured Article | Science + Research

What Is the Drug Development Pipeline?

Thousands of potentially beneficial therapies for neuromuscular diseases are being researched and tested in the drug development pipeline.

Tags: ASO, Clinical Trials, Drug Development, Exon Skipping, Featured Content, Gene Therapy, Innovation, Research


Featured Article | Personal Stories

Connecting Over Diagnosis Leads to Lifelong Friendships

Melissa Grove discovers the silver lining of her limb-girdle muscular dystrophy (LGMD) is making friends with others with the same diagnosis.

Tags: Community, Featured Content, From Where I Sit, MDA Care Centers


Featured Article | Science + Research

Updates on LGMD2I/R9

An expert Q&A with Katherine Mathews, MD, on limb-girdle muscular dystrophy 2I/R9 (also called LGMD2I or LGMDR9).

Tags: Drug Development, Featured Content, Research, Spotlight