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The first day of the 2023 MDA Clinical & Scientific Conference covered FDA approval, gene therapy, ultra-rare diseases, and more.

As new treatments, cutting edge research, and a better understanding of genetic sequencing and mutations bring innovative change to the treatment landscape for neuromuscular disease, understanding your options and accessing…

Public transportation can mean independence for people with disabilities if you know how to use it — and how to advocate for accessibility.

These tips from community members and a mental health expert can help you navigate dating and sex with a neuromuscular disease.

Neuromuscular diseases are a diverse group of rare, mostly genetic conditions. This has made developing treatments challenging. However, investments in rare disease research by private and public agencies, including MDA,…

We are excited to start a new year talking about new mindsets, especially when it comes to adversity. On our first episode of 2023, Mindy talks mindset with Jose Flores,…

Expert tips for healthy eating on a budget in a time of rising food costs and deepening food shortages.

A look at equity in treatment and access to care for Blacks and other people of color in the neuromuscular disease community.

Oculopharyngeal muscular dystrophy (OPMD) is a rare, slowly progressive muscle disease that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. In some cases, OPMD also causes…

It’s a new year with a new Congress. But what hasn’t changed is MDA’s commitment to improving the lives of people living with neuromuscular diseases. We accomplished a lot last…