Archives

A national caregiver shortage makes finding in-home caregivers a challenge for people with disabilities. Advocacy can help lead to solutions.

Genes play a role in ALS (Lou Gehrig’s disease), but so do nongenetic risk factors. Here’s what scientists know about what causes ALS.

In this Quest Podcast episode, we chat with a retired US Army veteran and firefighter, Ken Sutcliffe and his wife, Andi. He has devoted his career to saving lives but…

As the weather warms and the days lengthen, there are many different ways to get outside and enjoy the great outdoors. It’s the season of picnics, concerts, park days, and…

In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, TV personality and producer, Sophie Morgan. She devotes her time and expertise to create inclusive spaces for those with…

Tips to cope and live with hope when your child is diagnosed with muscular dystrophy or any neuromuscular disease.

Summer Nagele with one of her many Special Olympics medals. Summer Nagele is intent on sharing her gifts and talents with the world. The 19-year-old activist, advocate, and athlete has…

You’re not alone when coping with a diagnosis of muscular dystrophy or neuromuscular disease. Here are tips for handling your feelings and finding resources to live well.

Living in Pennsylvania with her son, Victoria is an active volunteer with her local newspaper, parent-teacher organization, and LGMD News magazine as an Assistant Editor. Her social media accounts are a…

In today’s fast paced world, we often forget to take care of ourselves.  We focus so much on helping others that we often tend to put our own feelings and…