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Blog Post | Finding a Diagnosis, Science + Research

Nongenetic Factors May Increase Odds of Developing ALS

Genes play a role in ALS (Lou Gehrig’s disease), but so do nongenetic risk factors. Here’s what scientists know about what causes ALS.

Tags: Featured Content, Research


Blog Post | Lifestyle

Get Outside: Tips for Accessible Outdoor Activities

As the weather warms and the days lengthen, there are many different ways to get outside and enjoy the great outdoors. It’s the season of picnics, concerts, park days, and…

Tags: Community, Resources, Staying Active


Blog Post | Finding a Diagnosis, Health

How to Cope When Your Child Is Diagnosed

Tips to cope and live with hope when your child is diagnosed with muscular dystrophy or any neuromuscular disease.

Tags: Community, Community Education, Featured Content, MDA Care Centers, MDA Resource Center, Mental Health, Parenting, Resources


Blog Post | Finding a Diagnosis, Health

Coping With a Difficult Diagnosis: Your Emotions Are Normal

You’re not alone when coping with a diagnosis of muscular dystrophy or neuromuscular disease. Here are tips for handling your feelings and finding resources to live well.

Tags: Community, Community Education, Featured Content, MDA Care Centers, MDA Peer Connections, MDA Resource Center, Mental Health, Resources


Blog Post | Health, Science + Research

Episode 39- Behind the Scenes: A Look at the Science and Research for New Treatments

In this Quest Podcast episode, we chat with geneticist, Dr. Jeffrey Chamberlain and the Chief Research Officer of the Muscular Dystrophy Association, Dr. Sharon Hesterlee.  Both have devoted their time…

Tags: Drug Development, Gene Therapy, Healthcare, Innovation, Research, Research Advances


Blog Post | Advocacy, Finding a Diagnosis, Health, Inclusion, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Finding Freedom in Accepting My Disability

Rebecca C. Ball-Schaller, who goes by Becca, is an avid crafter, Christmas fanatic, and cat lover. Her guilty pleasure is watching old horror films. She lives in Pennsylvania with her…

Tags: Ambassador Guest Blog, Ambassadors


Blog Post | Health, Personal Stories

MDA Ambassador Guest Blog: My Experience Participating in a Research Study

Lacey Woods is an MDA Ambassador living with LGMD2i (R9). She is a wife and mother of six children. She works with her husband in real estate and as a…

Tags: Ambassador Guest Blog, Ambassadors


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 38: Love Made Simple with Alexa and Jacqueline Child of DateAbility

In this Quest Podcast episode, we chat with the founders of DateAbility, a dating application geared towards individuals with disabilities and chronic illnesses. Alexa and Jacqueline Child have devoted their…

Tags: Relationships


Featured Article | Advocacy, Inclusion

Disability Benefits and the Marriage Penalty

Getting married may mean losing vital disability benefits. Here’s what’s being done to erase the marriage penalty.

Tags: Featured Content, Finance, Relationships


Featured Article | Inclusion, Independence

Raising Resilient Kids with Neuromuscular Diseases

People living with neuromuscular diseases share their upbringing and how their parents instilled resilience from a young age.

Tags: Featured Content, MDA Advocacy, MDA Ambassadors, MDA Let's Play, MDA Mentorship, MDA Resource Center, MDA Summer Camp, Mental Health, Parenting, Young Adults