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Featured Article | Science + Research

Updates on LGMD2I/R9

An expert Q&A with Katherine Mathews, MD, on limb-girdle muscular dystrophy 2I/R9 (also called LGMD2I or LGMDR9).

Tags: Drug Development, Featured Content, Research, Spotlight


Featured Article | Personal Stories, Science + Research

Neuromuscular Disease Researcher Doesn’t Let Dermatomyositis Stop Him

Neuroscientist Stephen Moore, PhD, shares his experience researching neuromuscular diseases and being diagnosed with dermatomyositis.

Tags: College, Drug Development, Featured Content, Muscle Walk, Quest for Success


Featured Article | Health

Physical and Occupational Therapy: What They Can Do for You

Almost every ordinary activity β€” eating a meal, taking a bath or shower, using the toilet, using a computer, driving a car β€” can be affected by weakening muscles caused…

Tags: Equipment and Assistive Devices, Featured Content, Healthcare, Staying Active, Web Exclusive


Blog Post | Health

CMT and Your Feet: Surgery Sometimes, Bracing Often, Caution Always

Charcot-Marie-Tooth disease (CMT) usually affects the feet, impacting mobility. Experts weigh in on when to consider foot surgery and bracing.

Tags: Equipment and Assistive Devices, Featured Content, Healthcare, MDA Care Centers


Blog Post | Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Love in Full Bloom on Camelback Mountain

Doug Clough is 61 years old (OMG) and lives in Gilbert, AZ. Doug has Amyotrophic Lateral Sclerosis (ALS, Lou Gehrig’s disease) and a spinal cord injury (SCI). He uses a…

Tags: Ambassador Guest Blog, Ambassadors, Relationships, Staying Active


Blog Post | Lifestyle, Research

International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Dwi U. Kemaladewi

In recognition of International Day of Women and Girls in Science, the Muscular Dystrophy Association (MDA) is honored and excited to highlight the career and accomplishments of Dr. Dwi U.…

Tags: Community, Education, Research


Blog Post | Advocacy, Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Advocacy Updates, Ambassadors, Clinical Trials, Community, In Case You Missed It, Insights by Ira, Ira


Blog Post | Advocacy

MDA Announces Advocacy Collaboration Grant Projects

In exciting news for the neuromuscular disease community, MDA’s Advocacy team has just announced the next recipients of MDA Advocacy Collaboration Grants! Applications opened in August 2023 with a focus…

Tags: Advocacy Updates


Blog Post | Health, Lifestyle, Personal Stories

Is Alternative Medicine Safe for Neuromuscular Disease Symptoms?

People with neuromuscular diseases and doctors discuss how complementary and alternative medicine helps symptoms.

Tags: Featured Content, Healthcare, Staying Active


Blog Post | Health, Science + Research

Research Study Alert: Genome-Wide Association Study in People with MuSK MG

Researchers at George Washington University areΒ seeking individuals living withΒ muscle-specific tyrosine kinase-associated myasthenia gravis (MuSK MG) to participate in a genome-wide association study. The objective of this study is to collect…

Tags: Research Study Alert