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Connecting Over Diagnosis Leads to Lifelong Friendships
Melissa Grove discovers the silver lining of her limb-girdle muscular dystrophy (LGMD) is making friends with others with the same diagnosis.
Updates on LGMD2I/R9
An expert Q&A with Katherine Mathews, MD, on limb-girdle muscular dystrophy 2I/R9 (also called LGMD2I or LGMDR9).
Neuromuscular Disease Researcher Doesn’t Let Dermatomyositis Stop Him
Neuroscientist Stephen Moore, PhD, shares his experience researching neuromuscular diseases and being diagnosed with dermatomyositis.
Physical and Occupational Therapy: What They Can Do for You
Almost every ordinary activity — eating a meal, taking a bath or shower, using the toilet, using a computer, driving a car — can be affected by weakening muscles caused…
CMT and Your Feet: Surgery Sometimes, Bracing Often, Caution Always
Charcot-Marie-Tooth disease (CMT) usually affects the feet, impacting mobility. Experts weigh in on when to consider foot surgery and bracing.
MDA Ambassador Guest Blog: Love in Full Bloom on Camelback Mountain
Doug Clough is 61 years old (OMG) and lives in Gilbert, AZ. Doug has Amyotrophic Lateral Sclerosis (ALS, Lou Gehrig’s disease) and a spinal cord injury (SCI). He uses a…
International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Dwi U. Kemaladewi
In recognition of International Day of Women and Girls in Science, the Muscular Dystrophy Association (MDA) is honored and excited to highlight the career and accomplishments of Dr. Dwi U.…
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Advocacy Updates, Ambassadors, Clinical Trials, Community, In Case You Missed It, Insights by Ira, Ira
MDA Announces Advocacy Collaboration Grant Projects
In exciting news for the neuromuscular disease community, MDA’s Advocacy team has just announced the next recipients of MDA Advocacy Collaboration Grants! Applications opened in August 2023 with a focus…
Tags: Advocacy Updates
Is Alternative Medicine Safe for Neuromuscular Disease Symptoms?
People with neuromuscular diseases and doctors discuss how complementary and alternative medicine helps symptoms.
Tags: Featured Content, Healthcare, Staying Active