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Researchers at George Washington University are seeking individuals living with muscle-specific tyrosine kinase-associated myasthenia gravis (MuSK MG) to participate in a genome-wide association study. The objective of this study is to collect…

Crème Brulee Prepared by Ira Walker Crème Brulee. It’s a creamy French dessert custard that is presented commonly in a small round ramekin. That’s the crème…but what about the brulee?  To…

Diagnosed with myotonic muscular dystrophy in adulthood, Thad is passionate about nature and exploring all that North Carolina has to offer. His newest project is cultivating mushrooms. Sixteen years ago, I…

As we embark on a new year, MDA’s commitment to changing public policy and truly empowering the neuromuscular community remains the same. MDA advocates accomplished a lot last year,  and…

In this Quest Podcast episode, we chat with one of Muscular Dystrophy Association’s Ambassadors, Isaac Banks about finding fulfillment in our lives as we skyrocket into 2024. As a certified…

Graphic Designer and MDA Board of Directors member, Matt Plummer Increased awareness, the dedication of advocates, and innovations in research have brought progress to the treatment landscape of rare disease.…

MDA Ambassador Mike Huddleston Mike Huddleston is 60 years old. He is originally from California and now lives in Severn, MD.  Mike was diagnosed with spinal muscular atrophy (SMA) Type…

MDA Advocacy offers many ways to get involved in the advocacy process. Our primary goal is to empower people living with neuromuscular disease to live, work, and play while leading…

MDA National Ambassador Leah Z. Hello friends, As we say goodbye to 2023, we welcome a New Year. I am so excited to see what 2024 has in store! I…

The 2024 MDA Clinical & Scientific Conference is just around the corner. We’re looking forward to you joining us, as we showcase groundbreaking research and clinical accomplishments by dedicated professionals…